CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54071 Delis-Kaplan Executive Function System (DKEFS) - All error types condition 4 scaled score

Scaled score of all error types for condition 4 Number-Letter Switching, as part of Delis-Kaplan Executive Function System (DKEFS)

Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52880 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B follow trail complete time

The element related to the time it takes the participant/subject to follow the trail in Part B as part of the Trail Making Test (TMT)

Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52153 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Less interested frequency

Frequency of being less interested in activities the subject used to enjoy, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54906 Vessel occlude temporary surgery procedure total duration

Total duration of all temporary vessel occlusions during surgery or other procedure

Supplemental Surgical/Procedural Interventions Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21103 Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale invalid score indicator

Indicator if Disinhibition subscale is invalid (has more than 3 questions missing) as part of Frontal Systems Behavior Scale (FrSBE)

Supplemental Frontal Systems Behavioral Scale (FrSBe) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21117 Subject name

Name of subject/participant

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54989 Stimulant former use age end value

Age in years at which the subject/participant stopped taking the selected former stimulant

Supplemental Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Supplemental History Data Source and Reliability Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14433 Cranial nerves global assessment result

The condition of Cranial Nerves

Supplemental Neurological Exam Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Exploratory Social Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52166 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity B5 Scale

Scale of the intensity of the event B-5, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54927 Blood pressure systolic target mean measurement

Target measurement for mean systolic blood pressure

Supplemental ICU Therapies Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52111 Clinician-Administered PTSD Scale for DSM-IV (CAPS) -Target Indicator

Indicator of who is involved, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54926 Workload after event rate

Rate in hours per week of the subject/participant's workload subsequent to the event

Supplemental Return to Work Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54998 Medication immunosuppressant current former type

Type of immunosuppressant medication formerly or currently taken by the subject/participant

Exploratory Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54739 Aneurysm shape pathology type

Type of shape or pathology of the aneurysm being documented

Supplemental Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52553 Subarachnoid hemorrhage first symptom date time

Date or date & time of the participant/subject's first symptom of subarachnoid hemorrhage

Supplemental Clinical Presentation Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21481 Rey Auditory Verbal Learning Test (RAVLT) - Word list B type

The type as related to word used as part of List B in the Rey Auditory Verbal Learning Test (RAVLT)

Exploratory Rey Auditory Verbal Learning Test [RAVLT] Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54935 Hypervolemic therapy volume augmentation indicator

Indicator of whether hypervolemic therapy or volume augmentation is being given to the subject/participant

Supplemental ICU Therapies Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52122 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Traumatic Event Indicator

Indicates the traumatic event, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54882 Aneurysm multiple indicator

Indicator of whether the subject/participant presents multiple aneurysms

Supplemental Surgical/Procedural Interventions Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21046 Frontal Systems Behavior Scale (FrSBE) - Action without other people request frequency scale

Frequency of doing things without being requested to do so as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54763 Imaging aneurysm Raymond Roy Occlusion Classification category

Category of the Raymond-Roy Occlusion Classification that applies to the aneurysm, as determined from imaging

Supplemental-Highly Recommended Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18626 Brief Symptom Inventory-18 (BSI18)- Feeling lonely scale

The scale for the participant's distress in feeling lonely

Supplemental Brief Symptom Inventory-18 (BSI-18) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54965 Medication statin current former take age start value

Age in years at which the subject/participant began taking the specified former or current statin medication

Exploratory Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.