CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2432-C54867	C54867	EEG rhythmic periodic multifocal pattern evolve type	Type(s) of evolution observed for multifocal rhythmic or period patterns on the electroencephalogram (EEG)	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2444-C52199	C52199	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity Associated Feature Depersonalization Scale	Intensity of the associated feature, depersonalization, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2436-C54915	C54915	Unruptured intracranial aneurysm management plan initial status	Status of initial management plan for unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2432-C54797	C54797	EEG reaction stimulation type	Type of reaction to stumulation observed on the electroencephalogram (EEG)	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2349-C55664	C55664	Ventilation tidal volume value	Value of the tidal volume maintained by the support ventilation device	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2403-C54439	C54439	Aneurysm rerupture after primary treatment date	Date when the aneurysm reruptured after primary treatment was completed	Exploratory	Aneurysm Retreatment and Re-rupture	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2367-C54676	C54676	Subarachnoid hemorrhage clinical deterioration infarction not related delayed ischemia other text	The free text field to describe the reason the subject has experienced clinical deterioration and/or cerebral infarction due other causes than delayed cerebral ischemia (DCI) after a subarachnoid hemorrhage	Supplemental	Neurological Complications	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2349-C52568	C52568	Intracranial pressure measurement interval	Interval between intracranial pressure (ICP) measurements	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2731-C20529	C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2480-C54467	C54467	Functional Gait Assessment (FGA) - Total score	Total score for the subject/participant's performance on all tasks, as part of the Functional Gait Assessment (FGA)	Supplemental	Functional Gait Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2453-C21007	C21007	Frontal Systems Behavior Scale (FrSBE) - Forgetful until prompt frequency scale	Frequency of forgetting to do things but then remembering when prompted or when it is too late as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale	Supplemental	Frontal Systems Behavioral Scale (FrSBe)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2432-C54875	C54875	EEG artifact breach status	Status of breach artifact presence on the electroencephalogram (EEG)	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2444-C52210	C52210	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity Associated Feature De-realization Scale	Intensity of the associated feature, derealization, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58608	C58608	Chemical mechanical intra-arterial balloon angioplasty indicator	Indicates if intra-arterial chemical or mechanical balloon angioplasty was performed	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2432-C54822	C54822	Seizure electrographic indicator	Indocator of whether an electrographic seizure was found via electroencephalogram (EEG)	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C53722	C53722	Mass effect aneurysm without subarachnoid hemorrhage sign type	The element related to signs of mass effect due to aneurysm without subarachnoid hemorrhage	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2349-C52578	C52578	Brain oxygen partial pressure lowest 5 minute average value	Value of lowest 5-minute average partial pressure of oxygen in brain tissue	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2484-C54923	C54923	Workload before event rate	Rate in hours per week of the subject/participant's workload prior to the event	Supplemental	Return to Work	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2453-C21022	C21022	Frontal Systems Behavior Scale (FrSBE) - Swearing frequency scale	Frequency of swearing as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale	Supplemental	Frontal Systems Behavioral Scale (FrSBe)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2433-C54954	C54954	Medication antihypertensive current former other text	The free-text field related to 'Medication antihypertensive current former type' specifying other text	Supplemental	Concomitant Medications	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2444-C52224	C52224	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Desired Number of Hours Sleep/night	Desired number of hours sleep per night, PTSD symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2498-C54091	C54091	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Difference scaled score	Scaled score difference, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Exploratory	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58616	C58616	Mechanical balloon angioplasty procedural adverse event type	Type of procedural adverse events related to mechanical angioplasty that occurred	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2432-C54841	C54841	EEG rhythmic periodic pattern general prevalence percent value	Percent value of the electroencephalogram (EEG) record that includes the generalized rhythmic or periodic pattern	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2429-C54753	C54753	Specimen collection tube type	Type of tube used for specimen collection	Core	Biospecimen Collection and Processing	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.