CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C54917	Unruptured intracranial aneurysm treatment reason	Reason for treatment of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54802	EEG reaction auditory stimulation other text	The free-text field related to 'EEG reaction stimulation type' specifying other change to auditory stimulation	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54441	Aneurysm retreatment after primary treatment date	Date when retreatment of the aneurysm following primary treatment occurred	Exploratory	Aneurysm Retreatment and Re-rupture	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52572	Intracranial pressure 5 minute average value	Mean value of intracranial pressure (ICP) measurements taken during the previous 5 minutes	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52619	Medical history atrial fibrillation other cause indicator	The indicator related to other cause of atrial fibrillation	Exploratory	Medical History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54877	EEG artifact ventilator status	Status of ventilator artifact presence on the electroencephalogram (EEG)	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52213	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity C4 Scale	Scale of the intensity of the event C-4, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54084	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total error count	The total number of errors made by the participant during their completion of Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Exploratory	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C58610	Chemical therapy intra-arterial indicator	Indicates if intra-arterial chemical therapy was performed	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54826	Seizure electrographic minute count	Count of total minutes of electrographic seizure per 24 hours, constituting the electrographic seizure burden	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52160	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Difficulty concentrating frequency	Frequency of having difficulty concentrating on what the subject as doing, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54910	Endovascular complication post surgery procedure type	Type of endovascular complication(s) which occurred following surgery or other procedure	Supplemental	Surgical/Procedural Interventions	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53724	Sentinel headache thunderclap history indicator	The indicator related to history of sentinel headache or thunderclap	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52580	Brain oxygen partial pressure measurement anatomical site	Anatomic site of measurement of partial pressure of oxygen in brain tissue	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18717	Imaging scanner model other text	The free-text field related to 'Imaging scanner model name' specifying other text. Name of model of imaging scanner	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52227	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Distant cut off frequency	Frequency of feeling distant or cut off from other people, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54095	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time scaled score	Complete time as a scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Exploratory	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C58628	Chemical therapy intra-arterial procedural adverse event other text	Free-text field related to other type of procedural adverse events related to intra-arterial chemical therapy	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54844	EEG rhythmic periodic generalized pattern evolve type	Type(s) of evolution observed for generalized rhythmic or period patterns on the electroencephalogram (EEG)	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52171	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Outside of the body frequency	Frequency of feeling outside of the body, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55003	Specimen centrifugation revolutions per minute value	The value related to revoluntions per minute in a centrifuge	Core	Biospecimen Collection and Processing	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54931	Hemodynamic therapy indicator	Indicator of whether hemodynamic therapy is being given to the subject/participant	Supplemental	ICU Therapies	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54105	Chronic renal disease history current diagnosis indicator	The indicator related to a history or current diagnosis of chronic renal disease	Exploratory	Concomitant Diseases	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52591	Systemic vascular resistance measurement anatomic site	Anatomic site at which systemic vascular resistance was measured	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52702	Connective tissue disease other type text	The free-text field related to other type of connective tissue disease	Supplemental	Medical History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.