CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
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Facioscapulohumeral Muscular Dystrophy
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Huntington's Disease
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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
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NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
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Sport Related Concussion
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Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 1872
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C52121 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - B, C, D Subtotals Score

Sum of subtotals of criterion B (items 1-5), criterion C (items 6-12) and criterion D (items 13-17), as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C22492 Blood estimate loss measurement

The measurement related to the estimated amount of blood loss.

 Supplemental Surgical/Procedural Interventions False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21044 Frontal Systems Behavior Scale (FrSBE) - Activity spontaneous involvement frequency scale

Frequency of getting involved with activities spontaneously (such as hobbies) as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54762 Imaging aneurysm occlusion percent value

Value of percentage of aneurysm that is occluded, as determined from imaging

 Supplemental-Highly Recommended Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18625 Brief Symptom Inventory-18 (BSI18)- Chest pains scale

The scale for the participant's distress by pains in heart or chest.

 Supplemental Brief Symptom Inventory-18 (BSI-18) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54964 Medication statin current former take duration

Duration in months for which the subject/participant took or has taken the specified former or current statin medication

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54734 Aneurysm sidewall branch count

Count of sidewall branches of the aneurysm being described

 Supplemental Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18701 Imaging modality other text

The free-text field related to 'Imaging modality type' specifying other text. Type of radiologic study performed on the participant/subject

 Supplemental Perfusion Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54082 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total error count

The total number of errors made by the participant during their completion of Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52131 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Unreal things frequency

Frequency of feeling things going around seemed unreal, or very strange and unfamiliar, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54889 Intervention surgical status

Status of surgical intervention

 Core Surgical/Procedural Interventions False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21063 Frontal Systems Behavior Scale (FrSBE) - Repeat mistakes frequency scale

Frequency of making the same mistakes over and over, not learning from past experience as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54770 Imaging aneurysm wall shear stress mean measurement

Measurement of the mean wall shear stress of the aneurysm, as computed from imaging

 Supplemental Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18633 Brief Symptom Inventory-18 (BSI18)- terror or panic scale

The scale for the participant's distress from spells of terror or panic .

 Supplemental Brief Symptom Inventory-18 (BSI-18) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54972 Non-steroidal anti-inflammatory drug current former type

Type of non-steroidal anti-inflammatory drug (NSAID) formerly or currently taken by the subject/participant

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14461 Reflex assessment limb result

The results from reflex limb assessment

 Supplemental Neurological Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54742 Aneurysm size increase indicator

Indicator for whether the aneurysm being documented has increased diameter = 1 mm in any direction in comparison to last imaging

 Supplemental-Highly Recommended Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54091 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Difference scaled score

Scaled score difference, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52142 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Criteria A Met Indicator

Indicates criteria A was met, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52348 12-item Short Form Health Survey Version 2 (SF-12v2) - Vitality Raw Score

Raw score of vitality (VT) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54897 Complication surgery procedure aneurysm treatment type

Type of complication which occurred during surgery or other procedure to treat aneurysm

 Supplemental Surgical/Procedural Interventions False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21080 Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale T score

T score for Disinhibition subscale as part of Frontal Systems Behavior Scale (FrSBE)

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21861 Beck Anxiety Inventory (BAI) - Total score interpretation type

Type of the total score (BAITotalScore) interpretation, as part of the Beck Anxiety Inventory (BAI)

 Exploratory Beck Anxiety Inventory (BAI) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18641 Brief Symptom Inventory-18 (BSI18)- Somatization normalized T score

Normalized T score for somatization symptom scale.

 Supplemental Brief Symptom Inventory-18 (BSI-18) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54980 Medication anticoagulant current former type

Type of anticoagulant medicaton formerly or currently taken by the subject/participant

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 1872

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.