CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 1701 - 1725 of 1776

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2364-C14637	C14637	Stroke discharge medication category	Class(es) of medications the participant/ subject was prescribed at hospital discharge following stroke	Supplemental	Discharge Medications	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2429-C55344	C55344	Microdialysis cerebral probe location anatomic site	Free-text field to describe the location of the probe for cerebral microdialysis specimens	Supplemental	Biospecimen Collection and Processing	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13165	C13165	Stroke Specific Quality of Life Scale (SS-QOL) - food self care scale	The scale for needing help to prepare food based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1183-C14282	C14282	Do not resuscitate or intubate (DNR or DNI) indicator	Indicates if participant/ subject was made DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13173	C13173	Stroke Specific Quality of Life Scale (SS-QOL) - sex social role scale	The scale for having sex less often based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2353-C13837	C13837	Modified Fisher scale grade	Indicates modified Fisher Scale grade	Supplemental	SAH Grading	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13181	C13181	Stroke Specific Quality of Life Scale (SS-QOL) - zipping upper extremity scale	The scale for trouble zipping a zipper based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13141	C13141	Stroke Specific Quality of Life Scale (SS-QOL) - rest energy scale	The scale for having to stop and rest during the day based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2353-C14250	C14250	Subarachnoid hemorrhage Sylvian fissure lateral part score	SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score	Supplemental	SAH Grading	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13189	C13189	Stroke Specific Quality of Life Scale (SS-QOL) - total score	The total score from the Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2438-C13236	C13236	National Institutes of Health Stroke Scale (NIHSS) - Visual field score	Visual fields assessed using the NIH Stroke Scale (NIHSS)	Supplemental	NIH Stroke Scale (NIHSS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13149	C13149	Stroke Specific Quality of Life Scale (SS-QOL) - trouble words language scale	The scale for trouble finding words to say things based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2341-C14207	C14207	Pre-hospital stroke identification screen indicator	Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)	Supplemental	Pre-Hospital/Emergency Status	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1305-C14699	C14699	Berg Balance Scale (BBS) - unsupport feet together scale	The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1305-C17394	C17394	Berg Balance Scale (BBS) - stand one leg scale	The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1305-C14700	C14700	Berg Balance Scale (BBS) - reach forward scale	The scale for assessment of reaching forward with outstretched arm while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1305-C14693	C14693	Berg Balance Scale (BBS) - sit stand scale	The scale for assessment of sitting to standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1305-C14701	C14701	Berg Balance Scale (BBS) - retrieve floor object scale	The scale for assessment of picking up object from the floor from a standing position based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1305-C14694	C14694	Berg Balance Scale (BBS) - unsupport stand scale	The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1305-C14702	C14702	Berg Balance Scale (BBS) - turn head scale	The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2338-C52709	C52709	Menopause begin age value	The age at which menopause began for the participant/subject	Exploratory	Medical History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2446-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Exploratory	Demographics - Unruptured Intracranial Aneurysms	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1305-C14695	C14695	Berg Balance Scale (BBS) - unsupport sit scale	The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1305-C14703	C14703	Berg Balance Scale (BBS) - turn around scale	The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2338-C52710	C52710	Menarche begin age value	The age at which menarche began for the participant/subject	Exploratory	Medical History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

Displaying 1701 - 1725 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.