CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 1676 - 1700 of 1776

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2478-C13187	C13187	Stroke Specific Quality of Life Scale (SS-QOL) - finish work or productivity scale	The scale for trouble finishing jobs based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2438-C13234	C13234	National Institutes of Health Stroke Scale (NIHSS) - level of consciousness tertiary question score	Level of consciousness (LOC) commands assessed using the NIH Stroke Scale (NIHSS)	Supplemental	NIH Stroke Scale (NIHSS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13147	C13147	Stroke Specific Quality of Life Scale (SS-QOL) - trouble phone language scale	The scale for trouble speaking on phone based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2353-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Supplemental	SAH Grading	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2341-C14205	C14205	Emergency Medical Services (EMS) scene arrival date and time	This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital	Supplemental	Pre-Hospital/Emergency Status	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2438-C13242	C13242	National Institutes of Health Stroke Scale (NIHSS) - best language score	Language ability assessed using the NIH Stroke Scale (NIHSS)	Supplemental	NIH Stroke Scale (NIHSS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13155	C13155	Stroke Specific Quality of Life Scale (SS-QOL) - standing mobility scale	The scale for trouble with standing based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2384-C13841	C13841	Subdural hematoma type	Indicates Subdural hematoma type	Supplemental-Highly Recommended	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2384-C14050	C14050	Hijdra scale total score	Indicates Hijdra scale - total Score	Supplemental	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2431-C18888	C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2348-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Core	Clinical Presentation	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2815-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Perfusion Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2815-C13873	C13873	Imaging perfusion computed tomography based identification perfusion defect volume type	Indicates CT (PCT) based identification of perfusion defect volume type	Supplemental	Perfusion Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2384-C13833	C13833	Graeb intraventricular hemorrhage (IVH) scale - third ventricle score	Indicates Graeb IVH Scale - Third ventricle score	Supplemental-Highly Recommended	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13164	C13164	Stroke Specific Quality of Life Scale (SS-QOL) - change personality scale	The scale for personality change on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1183-C14281	C14281	Comfort care measure type	Describes the types of comfort care the participant/ subject received	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13172	C13172	Stroke Specific Quality of Life Scale (SS-QOL) - friends social role Scale	The scale for not seeing as many friends based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2353-C13836	C13836	Fisher grade	Indicates Fisher grade	Supplemental	SAH Grading	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13180	C13180	Stroke Specific Quality of Life Scale (SS-QOL) - buttoning upper extremity scale	The scale for trouble buttoning buttons based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2353-C14248	C14248	Ogilvy subarachnoid hemorrhage grade	Ogilvy comprehensive grading system for classifying severity of SAH. In the system, 1 point is assigned for Hunt and Hess Grade 4 or 5, Fisher Scale score of 3 or 4, aneurysm size greater than 10 mm, patient age older than 50 years, and if the lesion is a giant (>= 25 mm) posterior circulation lesion. By adding the total points, the 5-point grading system is obtained	Supplemental	SAH Grading	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2338-C52700	C52700	Hypercoagulable disorder type text	The free-text field related to the type of hypercoagulable disorder	Supplemental	Medical History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13188	C13188	Stroke Specific Quality of Life Scale (SS-QOL) - work or productivity scale	The scale for trouble doing work as usual based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2438-C13235	C13235	National Institutes of Health Stroke Scale (NIHSS) - Best gaze score	Best gaze assessed using the NIH Stroke Scale (NIHSS)	Supplemental	NIH Stroke Scale (NIHSS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13148	C13148	Stroke Specific Quality of Life Scale (SS-QOL) - trouble communication language scale	The scale for people having trouble in understanding what person is saying based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2341-C14206	C14206	Emergency Medical Services (EMS) scene departure date and time	Date and time the EMS vehicle departs with the patient from the scene to take the patient to the hospital	Supplemental	Pre-Hospital/Emergency Status	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

Displaying 1676 - 1700 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.