CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
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Facioscapulohumeral Muscular Dystrophy
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Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1872
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C54738 Aneurysm thrombus indicator

Indicator for the presence of evidence of thrombus

 Supplemental Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54736 Contralateral stenocclusive vessel disease indicator

Indicator for the presence of contralateral stenoocclusive vessel disease

 Exploratory Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13882 Magnetic resonance angiography type

The type as related to magnetic resonance angiography (MRA)

 Supplemental-Highly Recommended Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13883 Computer tomography (CT) angiography type

The type of computer tomography angiography being performed

 Supplemental-Highly Recommended Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54735 Imaging previous scan elapsed month count

The number of months that passed since the previous scan

 Supplemental Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54734 Aneurysm sidewall branch count

Count of sidewall branches of the aneurysm being described

 Supplemental Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54732 Parent artery proximal aneurysm diameter measurement

Diameter of the parent artery proximal to the aneurysm being described

 Supplemental Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54733 Parent artery distal aneurysm diameter measurement

Diameter of the parent artery distal to the aneurysm being described

 Supplemental Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54731 Aneurysm bottleneck factor value

Value of the bottleneck factor of the aneurysm being described, calculated as the largest width of the aneurysm divided by the largest width of the aneurysm neck

 Supplemental-Highly Recommended Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54730 Aneurysm size ratio value

Value of the size ratio of the aneurysm being described, calculated as the largest height divided by the largest diameter of parent artery

 Supplemental-Highly Recommended Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54729 Aneurysm aspect ratio value

Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter

 Supplemental-Highly Recommended Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54729 Aneurysm aspect ratio value

Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter

 Supplemental-Highly Recommended Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54728 Aneurysm neck maximum measurement

Maximum measurement of the neck of the aneurysm being described

 Supplemental-Highly Recommended Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54728 Aneurysm neck maximum measurement

Maximum measurement of the neck of the aneurysm being described

 Supplemental-Highly Recommended Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54727 Aneurysm width measurement

Measurement of the width of the aneurysm being described

 Core Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54726 Aneurysm height measurement

Measurement of the height of the aneurysm being described

 Core Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54725 Aneurysm diameter maximum measurement

Measurement of the maximum diameter of the aneurysm being described

 Core Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54724 Disability adjusted life year score

Disability-Adjusted Life Year (DALY) score

 Exploratory Disability-Adjusted Life Years (DALY) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54723 Disability elapsed year count

Count of elapsed years that the subject/participant jas had the specified disability

 Exploratory Disability-Adjusted Life Years (DALY) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54722 Death age value

Value of the subject/participant's age at death

 Exploratory Disability-Adjusted Life Years (DALY) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54721 Shunt dependent hydrocephalus endoscopic third ventriculostomy code

Code for of whether the subject/participant is being treated for shunt-dependent hydrocephalus or has had endoscopic third ventriculostomy (ETV)

 Exploratory Shunt Dependency False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54720 Death post subarachnoid hemorrhage primary reason other text

The free-text field related to 'Death post subarachnoid hemorrhage primary reason' specifying other text

 Supplemental Death False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54719 Death post subarachnoid hemorrhage primary reason

Primary reason for or cause of death following subarachnoid hemorrhage (SAH)

 Supplemental Death False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54718 Death post subarachnoid hemorrhage neurological cause indicator

Indicator of whether death resulted from a neurological cause following subarachnoid hemorrhage (SAH)

 Supplemental Death False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54467 Functional Gait Assessment (FGA) - Total score

Total score for the subject/participant's performance on all tasks, as part of the Functional Gait Assessment (FGA)

 Supplemental Functional Gait Assessment False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1872

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.