CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13162 Stroke Specific Quality of Life Scale (SS-QOL) - irritable personality scale

The scale for being irritated based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54398 Aneurysm recanalization date

Date of recanalization of aneurysm

Supplemental Aneurysm Recanalization Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13170 Stroke Specific Quality of Life Scale (SS-QOL) - go out social role scale

The scale for not going out as often based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13834 Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score

Indicates Graeb IVH Scale - Fourth ventricle score

Supplemental SAH Grading Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13178 Stroke Specific Quality of Life Scale (SS-QOL) - writing upper extremity scale

The scale for trouble writing or typing based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14246 Fisher scale

Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging

Supplemental SAH Grading Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Exploratory Pregnancy and Perinatal History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10749 Echocardiogram tissue doppler septum A' velocity measurement

Tissue doppler septum A' velocity measured with echocardiography

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10771 Echocardiogram left ventricular end - systolic internal dimension z score

Calculated z-score for the left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10878 Holter exam arrhythmias identified indicator

The indicator of whether any arrhythmias were identified during the Holter examination

Supplemental Holter Exam Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10734 Echocardiogram left ventricle mass measurement

Left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10750 Echocardiogram tissue doppler septum S prime velocity measurement

Tissue doppler septum S' velocity measured with echocardiography

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10879 Holter exam arrhythmias identified type

Type of arrhythmias identified during the Holter examination

Supplemental Holter Exam Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10773 Echocardiogram right ventricular diastolic wall thickness z score

Calculated z-score for the right ventricular wall thickness in diastole (RVWTd) measured with echocardiography

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10736 Echocardiogram left ventricular dilated indicator

Indicator of whether the echocardiogram shows that the participant/subject has a dilated left ventricle

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10752 Echocardiogram tissue doppler mitral annulus A' velocity measurement

Tissue doppler mitral annulus A' velocity measured with echocardiography

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10776 Echocardiogram left ventricle mass z-score value

Calculated z-score for the left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10559 Spontaneous miscarriage count

Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters

Exploratory Pregnancy and Perinatal History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52693 High cholesterol treatment type

Type of treatment for high blood cholesterol

Supplemental Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10541 Diabetes treatment type

Type of treatment the participant/subject is receiving or has received for diabetes mellitus

Supplemental Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10737 Echocardiogram left ventricular outflow tract obstruction indicator

Indicator of whether the echocardiogram shows that the participant/subject has a left ventricular outflow tract (LVOT)

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10753 Echocardiogram tissue doppler mitral annulus S prime velocity measurement

Tissue doppler mitral annulus S' velocity measured with echocardiography

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C11133 History data not obtained reason

Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

Core History Data Source and Reliability Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Exploratory Demographics Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10543 Cancer head or neck radiation treatment indicator

Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation

Exploratory Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.