CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02453 Ischemia infarction hypoxic-ischemic injury pattern type

Pattern of the ischemia/infarction/hypoxic-ischemic injury

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07391 PTSD Checklist Civilian (PCL-C) - Jumpy indicator

Indicator of whether the subject experiences feeling jumpy or easily startled, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07110 Center for Epidemiologic Studies-Depression Scale (CES-D) - get going indicator

Indicates how often the subject felt like he/she couldn't get "going" in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02462 Gunshot wound caliber number

Number of the caliber of the gun used

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02419 Diffuse axonal injury traumatic axonal injury anatomic site

Anatomic site of the diffuse axonal injury (DAI) and/or traumatic axonal injury (TAI)

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02471 Subdural hematoma acute type

Type of acute subdural hematoma (SDH)

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02427 Epidural hematoma status

Status of a collection of blood between the skull and dura. On CT, the EDH typically (though not always) has a biconvex shape, an adjacent skull fracture/scalp injury, and classically does not cross sutural margins. (In patients with skull fractures, especially those in children involving the sutures, this rule may not always apply.) The acute EDH is hyperdense, but may contain hypodense areas representing unclotted blood. As the EDH evolves, it gradually loses its hyperdensity and may appear iso/hypodense. On MRI, the acute EDH is hypo/isointense on T1 and very hypointense on T2, GRE, and SW-imaging. The inwardly displaced dura should be directly visualized on MR as a thin dark line on all pulse sequences

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01566 Intracranial pressure monitoring start date and time

Date (and time, if applicable and known) the intracranial pressure (ICP) monitoring began

 Supplemental Intracranial Pressure (ICP) Monitoring False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54652 Cerebral perfusion pressure lowest value

Lowest value of the difference between the Mean Arterial Pressure (MAP) and the Intracranial Pressure (ICP). It represents the pressure gradient driving cerebral blood flow and hence oxygen and metabolite delivery

 Supplemental Vital Signs and Acute Physiological Measurements False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01023 Pupil shape right eye type

Type of shape of the pupil of the right eye

 Supplemental Neurological Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54286 Barrow Neurological Institute (BNI) Scale - Aneurysmal subarachnoid hemorrhage thickness scale

BNI scale measures increasing SAH thickness on a quantitative scale and is used to predict the likelihood to develop symptomatic vasospasm. The axial head CT for the slice demonstrating the thickest-appearing subarachnoid blood in any subarachnoid space is examined. The thickness of the subarachnoid blood is measured across the cistern or fissure (ie, perpendicular to the direction of the cistern or fissure on axial cut) in the thickest-appearing region. The scale is based on 5-mm increments of SAH thickness

 Supplemental Parenchymal Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

 Supplemental-Highly Recommended Clinical Presentation False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00026 Language spoken Fluent text

Text for each language that the participant/subject speaks fluently

 Supplemental Neurological Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01003 Pupil reactivity light right eye result

Result of testing of the contraction of the participant's/subject's right pupil when a bright light is shone on it from an angle

 Supplemental Pre-Hospital/Emergency Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02480 Subdural hematoma mixed density CSF-like collection indicator

Indicator of a collection of inhomogeneous blood products between the arachnoid and the dura, typically (though not always) with a crescent shape, in which timing (e.g., acute vs. chronic or subacute) is indeterminate

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02436 Ventricle - fourth shift effacement findings type

Other features of the fourth ventricle shift/effacement

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07376 PTSD Checklist Civilian (PCL-C) - Dream indicator

Indicator of whether the subject experiences repeated, disturbing dreams of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07095 Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator

Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07384 PTSD Checklist Civilian (PCL-C) - Distant indicator

Indicator of whether the subject experiences feeling distant or cut off from other people, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07103 Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator

Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07426 PTSD Checklist Civilian (PCL-C) - Total score

A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07111 Center for Epidemiologic Studies Depression Scale (CES-D) - total score

CES-D Total Score - summation of the scores for the 20 items (0-60)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01510 Blood pressure systolic mean daily measurement

Mean measurement of the participant's/subject's systolic blood pressure over a 24-hour period

 Supplemental Vital Signs and Blood Gases False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01551 Respiration type

Type of respiration.

 Supplemental Vital Signs and Blood Gases False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02472 Subdural hematoma acute status

Status of a collection of acute blood between the arachnoid and the dura, typically (though not always) hyperdense with a crescent shape on CT. Mixed density may be seen if the collection contains unclotted blood, CSF admixture, and/or active extravasation. On MRI, the acute SDH is iso/hypointense on T1 and very hypointense on T2, GRE, and SW-imaging. Note: Please see additional categories below for subacute, chronic, and mixed collections if these better describe the lesion, or if the chronicity/timing is uncertain

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.