CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1701 - 1725 of 1776

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2705-C21853	C21853	Beck Anxiety Inventory (BAI) - Feel scared bother scale	Scale that represents how much the participant has been bothered by feeling scared as part of the Beck Anxiety Inventory (BAI)	Exploratory	Beck Anxiety Inventory (BAI)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C53720	C53720	Speech disturbance global assessment other text	The free-text field related to other result of assessment of condition and ability of speech disturbance	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C53722	C53722	Mass effect aneurysm without subarachnoid hemorrhage sign type	The element related to signs of mass effect due to aneurysm without subarachnoid hemorrhage	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C53723	C53723	Focal neurological findings specify text	The free-text field related to focal neurological findings	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C05460	C05460	Seizure indicator	Indicator of seizure activity	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C53724	C53724	Sentinel headache thunderclap history indicator	The indicator related to history of sentinel headache or thunderclap	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C13230	C13230	Modified Rankin Scale (mRS) Score	The overall modified Rankin Scale (mRS) score assigned to the participant/ subject	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C54677	C54677	Subarachnoid hemorrhage speech disturbance global assessment result	The condition and ability of speech disturbance for subarachnoid hemorrhage studies	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C14434	C14434	Cranial nerve abnormal identifier type	The identified cranial nerve that assessed as abnormal	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C14438	C14438	Motor exam global abnormality present indicator	Global assessment whether an abnormality was present following the motor exam	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C14466	C14466	Sensory system global assessment result	The condition and ability of sensory system	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2368-C18947	C18947	Sensory system global assessment other text	The free-text field related to 'Sensory system global assessment result' specifying other text. The condition and ability of sensory system	Supplemental	Baseline Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2403-C54438	C54438	Aneurysm rerupture after primary treatment indicator	Indicator related to whether the aneurysm reruptured after primary treatment was completed	Exploratory	Aneurysm Retreatment and Re-rupture	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2403-C54439	C54439	Aneurysm rerupture after primary treatment date	Date when the aneurysm reruptured after primary treatment was completed	Exploratory	Aneurysm Retreatment and Re-rupture	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2403-C54440	C54440	Aneurysm retreatment after primary treatment indicator	Indicator related to whether there is a need for retreatment of the aneurysm following primary treatment	Exploratory	Aneurysm Retreatment and Re-rupture	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2403-C54441	C54441	Aneurysm retreatment after primary treatment date	Date when retreatment of the aneurysm following primary treatment occurred	Exploratory	Aneurysm Retreatment and Re-rupture	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2403-C54442	C54442	Aneurysm retreatment type	Type of aneurysm retreatment	Exploratory	Aneurysm Retreatment and Re-rupture	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2403-C54443	C54443	Aneurysm retreatment surgical type	Element related to type of surgical aneurysm retreatment	Exploratory	Aneurysm Retreatment and Re-rupture	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2403-C54444	C54444	Aneurysm retreatment endovascular type	Element related to type of endovascular aneurysm retreatment	Exploratory	Aneurysm Retreatment and Re-rupture	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2395-C54397	C54397	Aneurysm reopen neck remnant increase after treatment indicator	Indicator for whether there is reopening or increase in neck remnant after aneurysm treatment	Supplemental	Aneurysm Recanalization	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2395-C54398	C54398	Aneurysm recanalization date	Date of recanalization of aneurysm	Supplemental	Aneurysm Recanalization	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2347-C00700	C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Aneurysm History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2347-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Aneurysm History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2347-C52539	C52539	Family history subarachnoid hemorrhage indicator	Indicator for whether the participant/subject has a family history of subarachnoid hemorrhage	Supplemental	Aneurysm History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2347-C52547	C52547	Brain aneurysm unruptured measurement	The size (diameter in mm) of the unruptured brain aneurysm(s)	Supplemental	Aneurysm History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

Displaying 1701 - 1725 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.