CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1501 - 1525 of 1776
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19258 Occupation primary status

The status indicating the participant's/subject's current primary occupational status

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C19259 Occupation primary other status text

The free-text field to capture other status indicating the participant's/subject's current primary occupational status

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00204 Employment current status

Status of participant/subject's current employment

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C19260 Occupation secondary status

The status indicating the participant's/subject's current secondary occupational status

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00205 Family income range

Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C19482 Paid work hour week count

The number of hours per week in paid work

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13182 Stroke Specific Quality of Life Scale (SS-QOL) - opening jar upper extremity scale

The scale for trouble opening a jar based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13142 Stroke Specific Quality of Life Scale (SS-QOL) - too tired energy scale

The scale for too tired to do things based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13150 Stroke Specific Quality of Life Scale (SS-QOL) - repeat language scale

The scale for repeating self so others can understand based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13158 Stroke Specific Quality of Life Scale (SS-QOL) - interest mood scale

The scale for lack of interest in other people and activities based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13166 Stroke Specific Quality of Life Scale (SS-QOL) - eating self care scale

The scale for needing help eating based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13174 Stroke Specific Quality of Life Scale (SS-QOL) - social life social role scale

The scale for physical condition interfering with social life based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13183 Stroke Specific Quality of Life Scale (SS-QOL) - trouble vision scale

The scale for trouble seeing television based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13143 Stroke Specific Quality of Life Scale (SS-QOL) - not join family roles scale

The scale for not joining activities for fun with family based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13151 Stroke Specific Quality of Life Scale (SS-QOL) - walking mobility scale

The scale for having trouble walking based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13159 Stroke Specific Quality of Life Scale (SS-QOL) - withdrawn mood scale

The scale for felt withdrawn from other people based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13167 Stroke Specific Quality of Life Scale (SS-QOL) - dressing self care scale

The scale for needing help for getting dressed on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13175 Stroke Specific Quality of Life Scale (SS-QOL) - concentration thinking question scale

The scale for being hard to concentrate based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13176 Stroke Specific Quality of Life Scale (SS-QOL) - remembering thinking scale

The scale for trouble remembering based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13184 Stroke Specific Quality of Life Scale (SS-QOL) - primary energy scale

The scale for trouble reaching things because of poor eyesight based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1501 - 1525 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.