CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C52543 Brain aneurysm unruptured indicator

Indicator for whether the participant/subject has an unruptured brain aneurysm

Supplemental Aneurysm History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52557 Amphetamine strong desire use past three month frequency

How often the participant/subject has had a strong desire to use amphetamine type stimulants

Supplemental Aneurysm History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Aneurysm History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental Aneurysm History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52544 Brain aneurysm unruptured number

Number of unruptured brain aneurysms the participant/usbject has

Supplemental Aneurysm History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54397 Aneurysm reopen neck remnant increase after treatment indicator

Indicator for whether there is reopening or increase in neck remnant after aneurysm treatment

Supplemental Aneurysm Recanalization Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54398 Aneurysm recanalization date

Date of recanalization of aneurysm

Supplemental Aneurysm Recanalization Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54444 Aneurysm retreatment endovascular type

Element related to type of endovascular aneurysm retreatment

Exploratory Aneurysm Retreatment and Re-rupture Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54438 Aneurysm rerupture after primary treatment indicator

Indicator related to whether the aneurysm reruptured after
primary treatment was completed

Exploratory Aneurysm Retreatment and Re-rupture Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54439 Aneurysm rerupture after primary treatment date

Date when the aneurysm reruptured after primary treatment was completed

Exploratory Aneurysm Retreatment and Re-rupture Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54440 Aneurysm retreatment after primary treatment indicator

Indicator related to whether there is a need for retreatment of the aneurysm following primary treatment

Exploratory Aneurysm Retreatment and Re-rupture Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54441 Aneurysm retreatment after primary treatment date

Date when retreatment of the aneurysm following primary treatment occurred

Exploratory Aneurysm Retreatment and Re-rupture Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54442 Aneurysm retreatment type

Type of aneurysm retreatment

Exploratory Aneurysm Retreatment and Re-rupture Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54443 Aneurysm retreatment surgical type

Element related to type of surgical aneurysm retreatment

Exploratory Aneurysm Retreatment and Re-rupture Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14466 Sensory system global assessment result

The condition and ability of sensory system

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18947 Sensory system global assessment other text

The free-text field related to 'Sensory system global assessment result' specifying other text. The condition and ability of sensory system

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53720 Speech disturbance global assessment other text

The free-text field related to other result of assessment of condition and ability of speech disturbance

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53722 Mass effect aneurysm without subarachnoid hemorrhage sign type

The element related to signs of mass effect due to aneurysm without subarachnoid hemorrhage

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C05460 Seizure indicator

Indicator of seizure activity

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53723 Focal neurological findings specify text

The free-text field related to focal neurological findings

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53724 Sentinel headache thunderclap history indicator

The indicator related to history of sentinel headache or thunderclap

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14434 Cranial nerve abnormal identifier type

The identified cranial nerve that assessed as abnormal

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54677 Subarachnoid hemorrhage speech disturbance global assessment result

The condition and ability of speech disturbance for subarachnoid hemorrhage studies

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14438 Motor exam global abnormality present indicator

Global assessment whether an abnormality was present following the motor exam

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.