CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 226 - 250 of 1872
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17964 Pulmonic stenosis regurgitation comment text

The text detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve

Supplemental Echocardiogram II Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53690 Subarachnoid hemorrhag clinical deterioration occur date

The date clinical deterioration occurred afer subarachnoid hemorrhage

Supplemental Neurological Complications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14541 Systemic vascular resistance measurement

A measurement of the arteriolar constriction throughout the body

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52597 Medical history ischemic stroke range

The element related to the number of ischemic strokes the participant/subject has had

Supplemental Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54458 Dynamic Gait Index (DGI) - Step around obstacle task score

Score for the subject/participant's performance on the Step Around Obstacles task, as part of the Dynamic Gait Index (DGI)

Supplemental Functional Gait Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20980 Frontal Systems Behavior Scale (FrSBE) - Not able multi-task frequency scale

Frequency of being unable to do two things at once (for example, talk and prepare a meal) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20417 National Institutes of Health Stroke Scale (NIHSS) - Motor leg amputation text

The text field for explaining the amputation or joint fusion for question related to motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)

Supplemental NIH Stroke Scale (NIHSS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13163 Stroke Specific Quality of Life Scale (SS-QOL) - impatient personality scale

The scale for impatience with others based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54866 EEG rhythmic periodic pattern multifocal frequency value

Value in cycles per second of the frequency of the multifocal rhythmic or periodic pattern observed on the electroencephalogram (EEG)

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18491 Neurobehavioral Symptom Inventory (NSI) - Medical record number

Medical record number of the form completion, as part of the Neurobehavioral Symptom Inventory (NSI)

Supplemental Neurobehavioral Symptom Inventory (NSI) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04504 ECG heart rhythm result type

Type of heart rhythm apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55352 Microdialysate source type

The free-text field to specify the type of microdialysate specimen source

Supplemental Biospecimen Collection and Processing Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54952 Intracranial hypertension cerebral edema osmotherapy specify text

The free-text field related to 'Intracranial hypertension cerebral edema osmotherapy indicator' for specifying the osmotherapy administered

Supplemental ICU Therapies Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01568 Intracranial pressure monitoring stop date and time

Date (and time, if applicable and known) the intracranial pressure (ICP) catheter was removed from the participant/subject and the ICP monitoring was stopped

Supplemental Intracranial Pressure (ICP) Monitoring Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54795 EEG background voltage continuity category

Category of background voltage continuity related to the electroencephalogram (EEG)

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18419 Glasgow Outcome Scale Extended (GOS-E) - Relationship disruption indicator

Indicator if the participant faces any rifts in family relationships or friendships caused by psychological problems as part of Glasgow Outcome Scale Extended (GOS-E)

Supplemental Glasgow Outcome Scale Extended (GOSE) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54654 Partial pressure oxygen brain tissue under threshold duration

Length of time the measurement of oxygen dissolved in the brain tissue (PbtO2) is under the threshold

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01004 Pupil reactivity light left eye result

Result of testing of the contraction of the participant's/subject's left pupil when a bright light is shone on it from an angle

Supplemental Pre-Hospital/Emergency Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54656 Subarachnoid hemorrhage clinical deterioration infarction not related delayed ischemia type

The element relating to the reason the subject has experienced clinical deterioration and/or cerebral infarction due other causes than delayed cerebral ischemia (DCI) after a subarachnoid hemorrhage

Supplemental Neurological Complications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52567 Elapsed time unit of measure

Unit of measure for the elapsed-time value captured by another data element

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52605 Medical history carotid artery stenting anatomic site

The element related to the location of carotid artery stenting the participant/subject has had

Supplemental Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12888 Echocardiogram right ventricle ejection fraction measurement

Fraction of blood pumped out of the right ventricles with each heart beat measured with echocardiography

Supplemental Echocardiogram II Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54984 Medication anticoagulant former take age end value

Age in years at which the subject/participant stopped taking the selected former anticoagulant medication

Supplemental Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21002 Frontal Systems Behavior Scale (FrSBE) - Unable finish task frequency scale

Frequency of starting things but failing to finish them as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18516 Sensory system abnormality stocking glove present text

The free-text field to describe the stocking sensory abnormality, a generalised and gradual loss of peripheral nerve function results in a receding glove and stocking pattern

Supplemental Neurological Exam Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1872

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.