CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Aneurysm History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10770 Echocardiogram left ventricular end diastolic internal dimension z score

Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13875 Imaging perfusion computed tomography based identification perfusion defect value

Value of PCT based identification of perfusion defect abnormality

Supplemental Perfusion Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54853 EEG rhythmic periodic lateralized pattern evolve type

Type(s) of evolution observed for lateralized rhythmic or period patterns on the electroencephalogram (EEG)

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04806 ICU discharge destination type

Type of destination on completion of stabilization/evaluation in the intensive care unit (ICU) of the hospital

Supplemental Discharge Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55325 Specimen convalescent collected indicator

Indicator of whether or not convalescent samples were collected

Supplemental Biospecimen Collection and Processing Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54939 Sodium level upper threshold value

Value of upper sodium threshold level prompting treatment

Supplemental ICU Therapies Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14208 Pre-hospital neurological impairment scale indicator

Whether a pre-hospital neurologic impairment scale screen was documented by EMS personnel. Pre-hospital neurologic impairment scales are defined as published validated scales or those required by state EMS agencies (e.g., GCS for suspected hemorrhagic stroke or any stroke with impaired consciousness, Los Angeles Motor Scale, etc.)

Supplemental Pre-Hospital/Emergency Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54778 EEG monitoring type other text

The free-text fiel related to 'EEG Monitoring Type' specifying other text

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52608 Ventilator breath volume value

Value of the volume of gas per breath provided by a ventilator

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02468 Subarachnoid hemorrhage extent type

Type of distribution of the subarachnoid hemorrhage (SAH)

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04507 ECG complete bundle branch block status

Status of complete bundle branch block on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02424 Brain edema status

Status of an abnormal accumulation of water in the intracellular and/or extracellular spaces of the brain

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54453 Dynamic Gait Index (DGI) - Gait head turn vertical task score

Score for the subject/participant's performance on the Gait With Vertical Head Turns task, as part of the Dynamic Gait Index (DGI)

Supplemental Functional Gait Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20973 Frontal Systems Behavior Scale (FrSBE) - Hyperactivity frequency scale

Frequency of being unable to sit still, is hyperactive as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13245 National Institutes of Health Stroke Scale (NIHSS) - severity total score

The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)

Supplemental NIH Stroke Scale (NIHSS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13158 Stroke Specific Quality of Life Scale (SS-QOL) - interest mood scale

The scale for lack of interest in other people and activities based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54861 EEG rhythmic periodic bilateral independent pattern clinical correlate type

Type(s) of clinical correlate(s) observed for the bilateral independent rhythmic or periodic pattern on the electroencephalogram (EEG)

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00024 Language primary ISO code

Code (ISO 639-2) for the language the participant/subject speaks most often

Supplemental Neurological Exam Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55345 Microdialysis cerebral probe number

The number of probes used for cerebral microdialysis specimens

Supplemental Biospecimen Collection and Processing Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54947 Ventilation mechanical any total duration

Total duration in days of all mechanical ventilation administered to the subject/particpant

Supplemental ICU Therapies Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52740 Patient well last date and time

The date (and time, if known) the patient was last known to be well

Supplemental Pre-Hospital/Emergency Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54121 Seizure activity history current diagnosis indicator

The indicator related to a history or current diagnosis of seizure activity

Supplemental Concomitant Diseases Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54787 PDR presence indicator

Indicator for whether posterior dominant rhythm (PDR) is present in the subject/participant

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52616 Neurological Pupil index score

Score on the Neurological Pupil index (NPi)

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.