CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1776
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

 Supplemental-Highly Recommended Risk Factors False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54729 Aneurysm aspect ratio value

Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter

 Supplemental-Highly Recommended Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13752 Imaging computed tomography angiography (CTA) source used indicator

Indicates whether computed tomography angiography (CTA) source imaging was used

 Supplemental-Highly Recommended Parenchymal Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

 Supplemental-Highly Recommended Behavioral History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13836 Fisher grade

Indicates Fisher grade

 Supplemental-Highly Recommended Parenchymal Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13751 Imaging acquisition reason

Describes why the imaging study was performed

 Supplemental-Highly Recommended Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54878 EEG artifact electrical status

Status of electrical artifact presence on the electroencephalogram (EEG)

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C58611 Chemical therapy intra-arterial vasodilator type

Type of vasodilator utilized for intra-arterial chemical therapy

 Supplemental Rescue Therapy False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18725 Intracranial pressure catheter anatomic site other text

The free-text field related to 'Intracranial pressure catheter anatomic site' specifying other text. Anatomic site where the intracranial pressure (ICP) catheter is implanted in the participant/subject

 Supplemental Intracranial Pressure (ICP) Monitoring False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54829 EEG ictal onset not localized other text

The free-text field related to 'EEG ictal onset location type' specifying no localized onset text

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02474 Subdural hematoma acute volume measurement

Measured volume in cubic centimeters of the acute subdural hematoma (calculated from length, width, maximal thickness)

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13839 Hijdra scale value

Indicates Hijdra scale - value

 Supplemental SAH Grading False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

 Supplemental Pre-Hospital/Emergency Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54677 Subarachnoid hemorrhage speech disturbance global assessment result

The condition and ability of speech disturbance for subarachnoid hemorrhage studies

 Supplemental Baseline Assessment False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02430 Extraaxial hematoma status

Status of a collection of blood between the brain surface and the skull, but for which the exact site cannot be determined with certainty, and is not already classified as a more specific entity elsewhere in the data set

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14700 Berg Balance Scale (BBS) - reach forward scale

The scale for assessment of reaching forward with outstretched arm while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52584 Cerebrospinal fluid excess volume 24 hour rate

Rate in volume per 24 hours of excess cerebrospinal fluid (CSF) removed from the patient

 Supplemental Vital Signs and Acute Physiological Measurements False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21032 Frontal Systems Behavior Scale (FrSBE) - Action thoughtful frequency scale

Frequency of thinking things through before acting (for example, considers finances before spending money) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07108 Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator

Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13183 Stroke Specific Quality of Life Scale (SS-QOL) - trouble vision scale

The scale for trouble seeing television based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54957 Medication antihypertensive former take age end value

Age in years at which the subject/participant stopped taking the selected former antihypertensive medication

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C58629 Mechanical balloon angioplasty procedural adverse event other text

Free-text field related to type of procedural adverse events related to mechanical angioplasty that occurred

 Supplemental Rescue Therapy False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13143 Stroke Specific Quality of Life Scale (SS-QOL) - not join family roles scale

The scale for not joining activities for fun with family based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54846 EEG rhythmic periodic generalized pattern clinical correlate type

Type(s) of clinical correlate(s) observed for the generalized rhythmic or periodic pattern on the electroencephalogram (EEG)

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.