CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
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Facioscapulohumeral Muscular Dystrophy
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Huntington's Disease
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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
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NeuroRehab
Neuromuscular Diseases
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Sport Related Concussion
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Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1872
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C14698 Berg Balance Scale (BBS) - unsupport stand closed eyes scale

The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52584 Cerebrospinal fluid excess volume 24 hour rate

Rate in volume per 24 hours of excess cerebrospinal fluid (CSF) removed from the patient

 Supplemental Vital Signs and Acute Physiological Measurements False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07335 Neurobehavioral Symptom Inventory (NSI) - Appetite impairment score

Score of subject's appetite impairment, as part of the Neurobehavioral Symptom Inventory (NSI)

 Supplemental Neurobehavioral Symptom Inventory (NSI) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17928 Cardiac MRI myocardial scar anatomic site

Where myocardial scar was/was not detected

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18718 Imaging scanner strength value other text

The free-text field related to 'Imaging scanner strength value', specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13183 Stroke Specific Quality of Life Scale (SS-QOL) - trouble vision scale

The scale for trouble seeing television based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C58629 Mechanical balloon angioplasty procedural adverse event other text

Free-text field related to type of procedural adverse events related to mechanical angioplasty that occurred

 Supplemental Rescue Therapy False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13143 Stroke Specific Quality of Life Scale (SS-QOL) - not join family roles scale

The scale for not joining activities for fun with family based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54846 EEG rhythmic periodic generalized pattern clinical correlate type

Type(s) of clinical correlate(s) observed for the generalized rhythmic or periodic pattern on the electroencephalogram (EEG)

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14252 Subarachnoid hemorrhage suprasellar cistern score

SAH Volume Scale (Hijdra) - Suprasellar cistern left score

 Supplemental SAH Grading False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54932 Hemodynamic therapy specify text

The free-text field related to 'Hemodynamic therapy indicator' for specifying the hemodynamic therapy being given

 Supplemental ICU Therapies False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13517 Hand function findings result

Assess hand function on the affected side using the Orgogozo Stroke Scale

 Supplemental Pre-Hospital/Emergency Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17433 EEG generalized epileptiform abnormalities status

The status for electroencephalography (EEG) generalized epileptiform abnormalities

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14706 Berg Balance Scale (BBS) - scale total score

The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52592 Arterial pressure high measurement

Highest measurement of the participant/subject's arterial pressure

 Supplemental Vital Signs and Acute Physiological Measurements False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12906 Echocardiogram left ventricle non-compaction status

Status of non-compaction in the left ventricle as assessed by echocardiography

 Supplemental Echocardiogram II False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52703 Sleep apnea type text

The free-text field related to the type of sleep apnea

 Supplemental Medical History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18949 Sensory system modalities affected other text

The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality

 Supplemental Neurological Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07343 Neurobehavioral Symptom Inventory (NSI) - Depression impairment score

Score of subject's depression , as part of the Neurobehavioral Symptom Inventory (NSI)

 Supplemental Neurobehavioral Symptom Inventory (NSI) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)

 Supplemental Generalized Anxiety Disorder (GAD-7) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18413 Glasgow Outcome Scale Extended (GOS-E) - Consciousness indicator

Indicator if the participant is able to obey simple commands or say any words as part of Glasgow Outcome Scale Extended (GOS-E)

 Supplemental Glasgow Outcome Scale Extended (GOSE) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54446 Dynamic Gait Index (DGI) - Gait level surface task score

Score for the level-surface gait task, as part of the Dynamic Gait Index (DGI)

 Supplemental Functional Gait Assessment False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13238 National Institutes of Health Stroke Scale (NIHSS) - Motor arm score

Motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 Supplemental NIH Stroke Scale (NIHSS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13151 Stroke Specific Quality of Life Scale (SS-QOL) - walking mobility scale

The scale for having trouble walking based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54854 EEG rhythmic periodic lateralized pattern clinical correlate type

Type(s) of clinical correlate(s) observed for the lateralized rhythmic or periodic pattern on the electroencephalogram (EEG)

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1872

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.