CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C53687	Subarachnoid hemorrhage clinical deterioration infarction delayed cerebral ischemia indicator	The indicator relating to whether or not the subject has experienced clinical deterioration and/or cerebral infarction due to delayed cerebral ischemia (DCI) after a subarachnoid hemorrhage	Supplemental-Highly Recommended	Neurological Complications	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54742	Aneurysm size increase indicator	Indicator for whether the aneurysm being documented has increased diameter = 1 mm in any direction in comparison to last imaging	Supplemental-Highly Recommended	Radiological Findings	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00719	Tobacco product used type	Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental-Highly Recommended	Behavioral History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13848	Hydrocephalus present indicator	Indicates if hydrocephalus is present	Supplemental-Highly Recommended	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental-Highly Recommended	Risk Factors	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01000	Glasgow Coma Scale (GCS) - eye response scale	Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental-Highly Recommended	Clinical Presentation	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental-Highly Recommended	Risk Factors	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental-Highly Recommended	Perfusion Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52533	History previous subarachnoid hemorrhage unruptured intracranial aneurysm indicator	Indicator for whether the participant/subject has a history of subarachnoid hemorrhage due to unruptured intracranial aneurysm	Supplemental-Highly Recommended	Risk Factors	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54762	Imaging aneurysm occlusion percent value	Value of percentage of aneurysm that is occluded, as determined from imaging	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13837	Modified Fisher scale grade	Indicates modified Fisher Scale grade	Supplemental-Highly Recommended	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54728	Aneurysm neck maximum measurement	Maximum measurement of the neck of the aneurysm being described	Supplemental-Highly Recommended	Radiological Findings	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00035	Gender type	Self-reported gender of the participant/subject	Supplemental-Highly Recommended	Demographics - Unruptured Intracranial Aneurysms	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53689	Subarachnoid hemorrhage clinical deterioration delayed cerebral ischemia indicator	The indicator related to clinical deterioration due to a delayed cerebral ischemia (DCI) after a subarachnoid hemorrhage	Supplemental-Highly Recommended	Neurological Complications	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental-Highly Recommended	Behavioral History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54741	Aneurysm morphology type	Type of morphology exhibited by the aneurysm being documented	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental-Highly Recommended	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13896	Imaging vessel angiography level of confidence status	Indicates vessel angiography level of confidence	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01001	Glasgow Coma Scale (GCS) - motor response scale	Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental-Highly Recommended	Clinical Presentation	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13230	Modified Rankin Scale (mRS) Score	The overall modified Rankin Scale (mRS) score assigned to the participant/ subject	Supplemental-Highly Recommended	Modified Rankin Scale (mRS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental-Highly Recommended	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52534	Autosomal dominant polycystic kidney disease indicator	Whether or not the participant/subject has autosomal-dominant polycystic kidney disease	Supplemental-Highly Recommended	Risk Factors	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54763	Imaging aneurysm Raymond Roy Occlusion Classification category	Category of the Raymond-Roy Occlusion Classification that applies to the aneurysm, as determined from imaging	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02445	Intraventricular hemorrhage volume measurement	Measured volume in cubic centimeters of intraventricular hemorrhage	Supplemental-Highly Recommended	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.