CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1872
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00035 Gender type

Self-reported gender of the participant/subject.

Supplemental-Highly Recommended Demographics - Unruptured Intracranial Aneurysms Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13896 Imaging vessel angiography level of confidence status

Indicates vessel angiography level of confidence

Supplemental-Highly Recommended Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response.

Supplemental-Highly Recommended Clinical Presentation Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Supplemental-Highly Recommended Modified Rankin Scale (mRS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental-Highly Recommended Parenchymal Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52534 Autosomal dominant polycystic kidney disease indicator

Whether or not the participant/subject has autosomal-dominant polycystic kidney disease.

Supplemental-Highly Recommended Risk Factors Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54763 Imaging aneurysm Raymond Roy Occlusion Classification category

Category of the Raymond-Roy Occlusion Classification that applies to the aneurysm, as determined from imaging

Supplemental-Highly Recommended Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant.

Supplemental-Highly Recommended Behavioral History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54741 Aneurysm morphology type

Type of morphology exhibited by the aneurysm being documented

Supplemental-Highly Recommended Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18888 Imaging acquisition reason other text

The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed

Supplemental-Highly Recommended Parenchymal Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53687 Subarachnoid hemorrhage clinical deterioration infarction delayed cerebral ischemia indicator

The indicator relating to whether or not the subject has experienced clinical deterioration and/or cerebral infarction due to delayed cerebral ischemia (DCI) after a subarachnoid hemorrhage

Supplemental-Highly Recommended Neurological Complications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

Supplemental-Highly Recommended Clinical Presentation Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C06108 Tobacco smoke pack-year value

If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]

Supplemental-Highly Recommended Risk Factors Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54728 Aneurysm neck maximum measurement

Maximum measurement of the neck of the aneurysm being described

Supplemental-Highly Recommended Radiological Findings Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52535 Ethnicity pertinent intracranial aneurysm type

Ethnicity type pertinent to unruptured intracranial aneurysms the participant/subject most closely identifies with

Supplemental-Highly Recommended Risk Factors Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13831 Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score

Indicates Graeb IVH Scale - Right lateral ventricle score

Supplemental-Highly Recommended Parenchymal Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental-Highly Recommended Behavioral History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13850 Arteriovenous malformation present indicator

Indicates if arteriovenous malformation is present

Supplemental-Highly Recommended Parenchymal Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental-Highly Recommended Risk Factors Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52544 Brain aneurysm unruptured number

Number of unruptured brain aneurysms the participant/usbject has

Supplemental-Highly Recommended Radiological Findings Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53689 Subarachnoid hemorrhage clinical deterioration delayed cerebral ischemia indicator

The indicator related to clinical deterioration due to a delayed cerebral ischemia (DCI) after a subarachnoid hemorrhage

Supplemental-Highly Recommended Neurological Complications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02445 Intraventricular hemorrhage volume measurement

Measured volume in cubic centimeters of intraventricular hemorrhage

Supplemental-Highly Recommended Parenchymal Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54757 Imaging aneurysm dome size value

Value of the aneurysm dome size determined by imaging

Supplemental-Highly Recommended Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54729 Aneurysm aspect ratio value

Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter

Supplemental-Highly Recommended Radiological Findings Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 1872

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.