CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Exploratory Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07377 PTSD Checklist Civilian (PCL-C) - Act indicator

Indicator of whether the subject experiences suddenly acting or feeling as if a stressful experience were happening again (as if you were reliving it), as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52208 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity D5 Scale

Intensity of the event D-5, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55363 Multiplex platform batch effect indicator

Indicator for whether there was batch effect for multiplex platforms

Exploratory Biospecimen Collection and Processing Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17475 Cardiovascular history cardiac surgery type

Type of cardiac surgery or mechanical intervention the participant/subject underwent

Exploratory Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54724 Disability adjusted life year score

Disability-Adjusted Life Year (DALY) score

Exploratory Disability-Adjusted Life Years (DALY) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07385 PTSD Checklist Civilian (PCL-C) - Emotionally numb indicator

Indicator of whether the subject experiences feeling emotionally numb or being unable to have loving feelings for those close to you, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52223 Clinician-Administered PTSD Scale for DSM-IV (CAPS) -Duration more than one indicator

Indicator of duration more than one month, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54090 Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT) - Part B T score

Normalized T score for Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54649 Mass effect unruptured intracranial aneurysm sign type

The element related to signs of mass effect due to unruptured intracranial aneurysm

Exploratory Radiological Findings Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14433 Cranial nerves global assessment result

The condition of Cranial Nerves

Exploratory Cranial Nerve Function Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55001 Medication immunosuppressant current former take age start value

Age in years at which the subject/participant began taking the selected former or current immunosuppressant medication

Exploratory Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21117 Subject name

Name of subject/participant

Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52126 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - B or D Subtotals Score

Subtotals of B. Re-experiencing symptoms or D. Hyperarousal symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17397 Visit number

The numeric value associated with a particular assessment/examination of a participant/subject on a study

Exploratory 12-Item Short Form Health Survey (SF-12) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54766 Imaging aneurysm shear rate mean measurement

Measurement of the mean shear rate of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54968 Birth control method current former use other text

The free-text field related to 'Birth control method current former use type' specifying other text

Exploratory Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54086 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A T score

Normalized T score for Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52137 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Delay in Onset More Than 6 Months Indicator

Indicator of whether or not delay in onset of symptoms is more than 6 months, PTSD symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52344 12-item Short Form Health Survey Version 2 (SF-12v2) - Times calm peaceful scale

Scale of times feeling calm and peaceful during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54774 Imaging aneurysm low wall shear stress percent value

Value of the percentage of the aneurysm that is under low wall shear stress (WSS)

Exploratory Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54976 Hormone therapy current former type

Type of hormone therapy formerly or currently taken by the subject/participant

Exploratory Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13209 Generalized Anxiety Disorder (GAD-7) - restless scale

Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54097 Trail Making Test (TMT)- Part A image used source

Source of Part A image used, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.