CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54096 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Composite scaled score

Composite scaled scores of Number Sequencing and Letter Sequencing, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52145 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - PTSD Criterion D Indicator

Indicator of whether or not the number of PTSD criterion D symptoms is at least 2, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52351 12-item Short Form Health Survey Version 2 (SF-12v2) -Social Functioning Raw Score

Raw score of soocial functioning (SF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55002 Medication immunosuppressant former take age end value

Age in years at which the subject/participant stopped taking the selected former immunosuppressant medication

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54082 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total error count

The total number of errors made by the participant during their completion of Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52157 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Current PTSD Experience Symptom Frequency Text

Description of the current PTSD experience symptom and frequency, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07432 Patient Health Questionnaire (PHQ) - Sleep impairment score

Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Exploratory Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54767 Imaging aneurysm vorticity mean measurement

Measurement of the mean vorticity of the aneurysm, as computed from imaging

 Exploratory Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52098 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Difficulty remembering frequency

Frequency of having difficulty remembering some important parts of the event, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54969 Birth control method current former use duration

Duration in months for which the subject/participant used the selected current or former birth control method

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52168 Clinician-Administered PTSD Scale for DSM-IV (CAPS) -Threat To Physical Integrity Indicator

Indicator of threat to physical integrity, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)

 Exploratory Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54775 Imaging aneurysm oscillatory shear stress mean value

Value of the mean oscillatory shear stress of the aneurysm, as determined from imaging

 Exploratory Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52113 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Physical reactions frequency

Frequency of having physical reactions when the subject was reminded of the event , as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54977 Hormone therapy current former receive duration

Duration in months for which the subject/participant took or has taken the specified hormone therapy

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00007 Birth date

Date (and time, if applicable and known) the participant was born

 Exploratory Pregnancy and Perinatal History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C19500 Assessment performed date

The date of assessment of the examination being performed

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52125 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity B4 Scale

Scale of the intensity of the event B-4, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C08522 36-item Short Form Health Survey (SF-36) - Pain interfere work score

Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C16055 Full term delivery child indicator

Indicates whether the participant's/subject's child was delivered full-term

 Exploratory Pregnancy and Perinatal History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54085 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total time

The total time in seconds taken for the participant to complete Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52135 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity C3 Scale

Scale of the intensity of the event C-3, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52343 12-item Short Form Health Survey Version 2 (SF-12v2) - Work not carefully emotional problem scale

Scale for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54066 Delis-Kaplan Executive Function System (DKEFS) - Condition type

Type of conditions, as part of Delis-Kaplan Executive Function System (DKEFS)

 Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18504 Cranial nerves abnormality present text

The free-text field to explain the abnormality of the cranial nerve identified

 Exploratory Cranial Nerve Function False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.