CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1775
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54996 Potency enhancing drug current former use age start value

Age in years at which the subject/participant began taking the specified former or current potency-enhancing drug

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52173 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity D4 Scale

Scale of the intensity of the event D-4, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21479 Rey Auditory Verbal Learning Test (RAVLT) - Word list type

Type of trial as part of Rey Auditory Verbal Learning Test (RAVLT)

 Exploratory Rey Auditory Verbal Learning Test [RAVLT] True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52120 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Mid-sleep Awakening Indicator

Indicator of mid-sleep awakening, PTSD symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54081 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total time

The total time in seconds taken for the participant to complete Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52130 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Frequency Description/examples Text

Description/examples of frequency, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52339 Subject initial text

The free-text field related to the initials of the subject

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54769 Imaging aneurysm vortex coreline length measurement

Measurement of the vortex coreline length of the aneurysm, as computed from imaging

 Exploratory Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54971 Birth control method former use age end value

Value in years of the age at which the subject/participant ended use of the selected former birth control method

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54090 Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT) - Part B T score

Normalized T score for Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52140 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Onset of Symptoms Duration

Onset of PTSD symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52347 12-item Short Form Health Survey Version 2 (SF-12v2) -Role Emotional Raw Score

Raw score of role emotional (RE) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54777 Imaging aneurysm inflow concentration index value

Value of the inflow concentration index of the aneurysm, as determined from imaging

 Exploratory Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54979 Hormone therapy former receive age end value

Age in years at which the subject/participant stopped taking the specified former hormone therapy

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13212 Generalized Anxiety Disorder (GAD-7) - total score

Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21117 Subject name

Name of subject/participant

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52150 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Current PTSD Multiple Periods Text

Description of the current PTSD multiple periods, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52355 12-item Short Form Health Survey Version 2 (SF-12v2) - General Health Raw Score

Raw score of general health (GH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54904 Vessel occlude temporary surgery procedure count

Count of blood vessels that were temporarily occluded during surgery or other procedure

 Exploratory Surgical/Procedural Interventions False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54721 Shunt dependent hydrocephalus endoscopic third ventriculostomy code

Code for of whether the subject/participant is being treated for shunt-dependent hydrocephalus or has had endoscopic third ventriculostomy (ETV)

 Exploratory Shunt Dependency False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07381 PTSD Checklist Civilian (PCL-C) - Activities indicator

Indicator of whether the subject experiences avoiding activities or situations because they reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52215 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Sleep Onset Problems Indicator

Indicator of sleep onset problems, PTSD symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C11131 Body mass index value

Value of the participant/subject's body mass index, calculated from height and weight

 Exploratory Risk Factors False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1775

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.