CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02471 Subdural hematoma acute type

Type of acute subdural hematoma (SDH)

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02472 Subdural hematoma acute status

Status of a collection of acute blood between the arachnoid and the dura, typically (though not always) hyperdense with a crescent shape on CT. Mixed density may be seen if the collection contains unclotted blood, CSF admixture, and/or active extravasation. On MRI, the acute SDH is iso/hypointense on T1 and very hypointense on T2, GRE, and SW-imaging. Note: Please see additional categories below for subacute, chronic, and mixed collections if these better describe the lesion, or if the chronicity/timing is uncertain

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02473 Subdural hematoma acute anatomic site

Anatomic site of the acute subdural hematoma (SDH)

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14255 Subarachnoid hemorrhage volume total measurement

Subarachnoid hemorrhage (SAH) volume scale (Hijdra) - total amount of subarachnoid blood. Sum of the scores of the 10 basal cisterns and fissures

 Supplemental SAH Grading False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14250 Subarachnoid hemorrhage Sylvian fissure lateral part score

SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score

 Supplemental SAH Grading False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14252 Subarachnoid hemorrhage suprasellar cistern score

SAH Volume Scale (Hijdra) - Suprasellar cistern left score

 Supplemental SAH Grading False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54677 Subarachnoid hemorrhage speech disturbance global assessment result

The condition and ability of speech disturbance for subarachnoid hemorrhage studies

 Supplemental Baseline Assessment False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53693 Subarachnoid hemorrhage seizure occur date

The date(s) on which the subject experienced seizure(s) since having subarachnoid hemorrhage

 Supplemental Neurological Complications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53684 Subarachnoid hemorrhage rebleeding indicator

The indicator related to rebleeding after a subarachnoid hemorrhage

 Supplemental-Highly Recommended Neurological Complications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53685 Subarachnoid hemorrhage rebleed occur date

Date rebleeding occurred after subarachnoid hemorrhage

 Supplemental Neurological Complications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52556 Subarachnoid hemorrhage rebleed count

Count of subarachnoid hemorrhage (SAH) rebleeds

 Supplemental Clinical Presentation False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14254 Subarachnoid hemorrhage quadrigeminal cistern score

SAH Volume Scale (Hijdra) - Quadrigeminal cistern score

 Supplemental SAH Grading False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53698 Subarachnoid hemorrhage meningitis ventriculitis occur date

The date on which the subject first first experienced meningitis/ventriculitis since having a subarachnoid hemorrhage

 Supplemental Neurological Complications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53695 Subarachnoid hemorrhage meningitis ventriculitis indicator

The indicator relating to whether or not the subject had meningitis or ventriculitis following a subarachnoid hemorhage

 Supplemental Neurological Complications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02469 Subarachnoid hemorrhage indicator

Indicator of macroscopic blood located between the brain surface and the arachnoid membrane. On CT and MR, the blood in this location will follow the contour of the sulci and cisterns. Acute SAH is hyperdense on CT and hyperintense on FLAIR MR imaging

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02469 Subarachnoid hemorrhage indicator

Indicator of macroscopic blood located between the brain surface and the arachnoid membrane. On CT and MR, the blood in this location will follow the contour of the sulci and cisterns. Acute SAH is hyperdense on CT and hyperintense on FLAIR MR imaging

 Supplemental-Highly Recommended Parenchymal Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54886 Subarachnoid hemorrhage ictus elapsed hour count

Count of 60-minute intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention

 Supplemental Surgical/Procedural Interventions False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54885 Subarachnoid hemorrhage ictus elapsed day count

Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention

 Supplemental-Highly Recommended Surgical/Procedural Interventions False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53686 Subarachnoid hemorrhage hydrocephalus occur date

Date hydrocephalus occurred after subarachnoid hemorrhage

 Supplemental Neurological Complications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52558 Subarachnoid hemorrhage hospital admission first symptom type other text

The free-text field related to 'SAHHospitlAdmitFirstSymptomTyp' specifying other text

 Supplemental Clinical Presentation False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52554 Subarachnoid hemorrhage hospital admission first symptom type

Type of symptom first experienced by the participant/subject leading to hospital admission resulting in subarachnoid hemorrhage (SAH) diagnosis

 Supplemental Clinical Presentation False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52553 Subarachnoid hemorrhage first symptom date time

Date or date & time of the participant/subject's first symptom of subarachnoid hemorrhage

 Supplemental Clinical Presentation False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02467 Subarachnoid hemorrhage findings type

Further describes the subarachnoid hemorrhage (SAH) as linear vs. mass-like and acute hydrocephalous present

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52570 Subarachnoid hemorrhage family member relationship text

Specify the relationship(s) that a family member with subarachnoid hemorrhage has with the subject/participant

 Supplemental Family History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02468 Subarachnoid hemorrhage extent type

Type of distribution of the subarachnoid hemorrhage (SAH)

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.