CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2341-C10677	C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Pre-Hospital/Emergency Status	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2333-C10677	C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Exploratory	Demographics	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2477-C12025	C12025	Written Verbal Fluency Test (WVFT) - write letter S word five minute count	Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2477-C12026	C12026	Written Verbal Fluency Test (WVFT) - write four letter C word four minute count	Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2477-C12029	C12029	Written Verbal Fluency Test (WVFT) - index value	Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2477-C12028	C12028	Written Verbal Fluency Test (WVFT) - copy word fast possible duration	Duration required by the participant/subject to copy the legitimate words from both the intial-S list and the 4-letter initial-C list as fast as possible	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2477-C12027	C12027	Written Verbal Fluency Test (WVFT) - copy previous word rapid text	Text of previously generated words copied by the participant/subject as fast as possible as part of Written Verbal Fluency Test	Exploratory	Written Verbal Fluency Test	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2353-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Supplemental	SAH Grading	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2348-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Core	Clinical Presentation	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2484-C54923	C54923	Workload before event rate	Rate in hours per week of the subject/participant's workload prior to the event	Supplemental	Return to Work	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2484-C54926	C54926	Workload after event rate	Rate in hours per week of the subject/participant's workload subsequent to the event	Supplemental	Return to Work	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2484-C54924	C54924	Work responsibility level previous resume indicator	Indicator of whether the subject/participant has resumed their previous level of responsibility at work	Supplemental	Return to Work	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2484-C54925	C54925	Work responsibility level previous not resume reason	Reason that the subject/participant has not resumed their previous level of responsibility at work	Supplemental	Return to Work	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2431-C54761	C54761	Wall opposition stent flow diverter quality grade	Grade of wall opposition quality for stents or flow diverters	Supplemental	Vessel Imaging Angiography	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2445-C04807	C04807	Vital status	Status of participant/subject as alive or dead	Supplemental	Death	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2362-C04807	C04807	Vital status	Status of participant/subject as alive or dead	Supplemental	Discharge Status	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2485-C17397	C17397	Visit number	The numeric value associated with a particular assessment/examination of a participant/subject on a study	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2485-C17409	C17409	Visit date	Date of interview or visit (actually the date when data in the form were captured)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2434-C54884	C54884	Vessel repair anatomic site	Anatomic site of the vessel that was repaired	Supplemental-Highly Recommended	Surgical/Procedural Interventions	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2434-C54906	C54906	Vessel occlude temporary surgery procedure total duration	Total duration of all temporary vessel occlusions during surgery or other procedure	Supplemental	Surgical/Procedural Interventions	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2434-C54905	C54905	Vessel occlude temporary surgery procedure maximum duration	Maximum duration of temporary vessel occlusion during surgery or other procedure	Supplemental	Surgical/Procedural Interventions	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2434-C54903	C54903	Vessel occlude temporary surgery procedure indicator	Indicator of whether any blood vessels were temporarily occluded during surgery or other procedure	Supplemental	Surgical/Procedural Interventions	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2434-C54904	C54904	Vessel occlude temporary surgery procedure count	Count of blood vessels that were temporarily occluded during surgery or other procedure	Exploratory	Surgical/Procedural Interventions	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2434-C54887	C54887	Ventriculostomy placement indicator	Indicator of whether ventriculostomy placement was performed	Supplemental	Surgical/Procedural Interventions	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02435	C02435	Ventricle - fourth shift effacement status	Status of displacement or effacement of the fourth ventricle 2 mm or more due to adjacent mass lesions or brain swelling	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.