CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives

Supplemental Pre-Hospital/Emergency Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives

Exploratory Demographics Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12025 Written Verbal Fluency Test (WVFT) - write letter S word five minute count

Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12026 Written Verbal Fluency Test (WVFT) - write four letter C word four minute count

Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12029 Written Verbal Fluency Test (WVFT) - index value

Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12028 Written Verbal Fluency Test (WVFT) - copy word fast possible duration

Duration required by the participant/subject to copy the legitimate words from both the intial-S list and the 4-letter initial-C list as fast as possible

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12027 Written Verbal Fluency Test (WVFT) - copy previous word rapid text

Text of previously generated words copied by the participant/subject as fast as possible as part of Written Verbal Fluency Test

Exploratory Written Verbal Fluency Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14256 World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale

World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale

Supplemental SAH Grading Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14256 World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale

World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale

Core Clinical Presentation Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54923 Workload before event rate

Rate in hours per week of the subject/participant's workload prior to the event

Supplemental Return to Work Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54926 Workload after event rate

Rate in hours per week of the subject/participant's workload subsequent to the event

Supplemental Return to Work Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54924 Work responsibility level previous resume indicator

Indicator of whether the subject/participant has resumed their previous level of responsibility at work

Supplemental Return to Work Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54925 Work responsibility level previous not resume reason

Reason that the subject/participant has not resumed their previous level of responsibility at work

Supplemental Return to Work Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54761 Wall opposition stent flow diverter quality grade

Grade of wall opposition quality for stents or flow diverters

Supplemental Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04807 Vital status

Status of participant/subject as alive or dead

Supplemental Death Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04807 Vital status

Status of participant/subject as alive or dead

Supplemental Discharge Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17397 Visit number

The numeric value associated with a particular assessment/examination of a participant/subject on a study

Exploratory 12-Item Short Form Health Survey (SF-12) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

Exploratory 12-Item Short Form Health Survey (SF-12) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54884 Vessel repair anatomic site

Anatomic site of the vessel that was repaired

Supplemental-Highly Recommended Surgical/Procedural Interventions Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54906 Vessel occlude temporary surgery procedure total duration

Total duration of all temporary vessel occlusions during surgery or other procedure

Supplemental Surgical/Procedural Interventions Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54905 Vessel occlude temporary surgery procedure maximum duration

Maximum duration of temporary vessel occlusion during surgery or other procedure

Supplemental Surgical/Procedural Interventions Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54903 Vessel occlude temporary surgery procedure indicator

Indicator of whether any blood vessels were temporarily occluded during surgery or other procedure

Supplemental Surgical/Procedural Interventions Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54904 Vessel occlude temporary surgery procedure count

Count of blood vessels that were temporarily occluded during surgery or other procedure

Exploratory Surgical/Procedural Interventions Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54887 Ventriculostomy placement indicator

Indicator of whether ventriculostomy placement was performed

Supplemental Surgical/Procedural Interventions Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02435 Ventricle - fourth shift effacement status

Status of displacement or effacement of the fourth ventricle 2 mm or more due to adjacent mass lesions or brain swelling

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.