CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
12871 results.
Operations
Selected 21 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C50806 Screen for Child Anxiety Related Disorders (SCARED) - Social anxiety disorder score

The score related to the questions related to social anxiety disorder as part of the Screen for Child Anxiety Related Disorders (SCARED) scale

 Supplemental Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version True Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C50807 Screen for Child Anxiety Related Disorders (SCARED) - Significant school avoidance score

The score related to the questions related to significant school avoidance as part of the Screen for Child Anxiety Related Disorders (SCARED) scale

 Supplemental Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version True Traumatic Brain Injury Epidemiology
C50807 Screen for Child Anxiety Related Disorders (SCARED) - Significant school avoidance score

The score related to the questions related to significant school avoidance as part of the Screen for Child Anxiety Related Disorders (SCARED) scale

 Supplemental Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version True Traumatic Brain Injury Comprehensive
C50807 Screen for Child Anxiety Related Disorders (SCARED) - Significant school avoidance score

The score related to the questions related to significant school avoidance as part of the Screen for Child Anxiety Related Disorders (SCARED) scale

 Supplemental Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version True Traumatic Brain Injury Concussion/Mild TBI
C50807 Screen for Child Anxiety Related Disorders (SCARED) - Significant school avoidance score

The score related to the questions related to significant school avoidance as part of the Screen for Child Anxiety Related Disorders (SCARED) scale

 Supplemental Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version True Traumatic Brain Injury Acute Hospitalized
C50807 Screen for Child Anxiety Related Disorders (SCARED) - Significant school avoidance score

The score related to the questions related to significant school avoidance as part of the Screen for Child Anxiety Related Disorders (SCARED) scale

 Supplemental Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version True Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C21323 Quality of Life - Movement without assistance floor stand ability scale

The scale which represents the extent to which the participant was able to get up off the floor from lying on their back without help, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C21324 Quality of Life - Movement walk fifteen minute duration ability scale

The scale which represents the extent to which the participant was able to go for a walk of at least 15 minutes, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55373 Quality of Life - Mobility walk normal speed scale

The scale which represents the extent the participant was able to walk at a normal speed, as a part of Patient Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55374 Quality of Life - Mobility up and down stairs normal pace scale

The scale which represents the extent the participant was able to go up and down stairs at a normal pace, as a part of Patient Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55375 Quality of Life - Mobility jump up and down scale

The scale which represents the extent the participant was able to jump up and down, as a part of Patient Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55376 Quality of Life - Mobility climb up five steps scale

The scale which represents the extent the participant was able to climb up five steps, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55377 Quality of Life - Mobility run short distance scale

The scale which represents the extent the participant was able to run a short distance, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55378 Quality of Life - Mobility stand unsupported 10 minutes scale

The scale which represents the extent the participant was able to stand unsupported for ten minutes, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55379 Quality of Life - Mobility stand one hour scale

The scale which represents the extent the participant was able to stand for one hour, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55380 Quality of Life - Mobility stand up tiptoes scale

The scale which represents the extent the participant was able to stand up on their tiptoes, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55381 Quality of Life - Mobility stand unsupported 30 minutes scale

The scale which represents the extent the participant was able to stand unsupported for 30 minutes, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55383 Quality of Life - Mobility armless straight chair stand up scale

The scale which represents the amount of difficulty the participant currently has in standing up from an armless straight chair (e.g., dining room chair), as part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55384 Quality of Life - Mobility health limit going for short walk scale

The scale which represents the extent the participant is able to go for a short walk (less than 15 minutes), as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55385 Quality of Life - Mobility health limited climbing one flight of stairs scale

The scale which represents the extent the participant's health limited he or she in climbing one flight of stairs, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
C55386 Quality of Life - Mobility health limit climb several flights of stairs scale

The scale which represents the extent the participant' s health limited he or she in climbing several flights of stairs, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

 Supplemental Patient-Reported Outcome Measurement Information System (PROMIS), Mobility Domain True Traumatic Brain Injury Comprehensive
12871 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.