CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 12476 - 12500 of 12871

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2024-C54073	C54073	Quality of Life - Upper extremity wash back scale	The scale which represents the extent the participant was able to wash their back, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C54075	C54075	Quality of life - Put on take off coat or jacket scale	The scale which represents the extent the participant was able to put on and take off a coat or jacket, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C54075	C54075	Quality of life - Put on take off coat or jacket scale	The scale which represents the extent the participant was able to put on and take off a coat or jacket, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C54075	C54075	Quality of life - Put on take off coat or jacket scale	The scale which represents the extent the participant was able to put on and take off a coat or jacket, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C54075	C54075	Quality of life - Put on take off coat or jacket scale	The scale which represents the extent the participant was able to put on and take off a coat or jacket, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C54075	C54075	Quality of life - Put on take off coat or jacket scale	The scale which represents the extent the participant was able to put on and take off a coat or jacket, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C54077	C54077	Quality of life - Upper extremity dry back with towel scale	The scale which represents the extent the participant was able to dry their back, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C54077	C54077	Quality of life - Upper extremity dry back with towel scale	The scale which represents the extent the participant was able to dry their back, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C54077	C54077	Quality of life - Upper extremity dry back with towel scale	The scale which represents the extent the participant was able to dry their back, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C54077	C54077	Quality of life - Upper extremity dry back with towel scale	The scale which represents the extent the participant was able to dry their back, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C54077	C54077	Quality of life - Upper extremity dry back with towel scale	The scale which represents the extent the participant was able to dry their back, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C54146	C54146	Quality of Life - Upper extremity peel fruit ability scale	The scale which represents the extent to which the participant was able to peel fruit, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C54146	C54146	Quality of Life - Upper extremity peel fruit ability scale	The scale which represents the extent to which the participant was able to peel fruit, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C54146	C54146	Quality of Life - Upper extremity peel fruit ability scale	The scale which represents the extent to which the participant was able to peel fruit, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C54146	C54146	Quality of Life - Upper extremity peel fruit ability scale	The scale which represents the extent to which the participant was able to peel fruit, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C54146	C54146	Quality of Life - Upper extremity peel fruit ability scale	The scale which represents the extent to which the participant was able to peel fruit, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C54330	C54330	Quality of Life - Upper extremity put on shirt blouse ability scale	The scale which represents the extent the participant was able to put on a shirt or blouse, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C54330	C54330	Quality of Life - Upper extremity put on shirt blouse ability scale	The scale which represents the extent the participant was able to put on a shirt or blouse, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C54330	C54330	Quality of Life - Upper extremity put on shirt blouse ability scale	The scale which represents the extent the participant was able to put on a shirt or blouse, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C54330	C54330	Quality of Life - Upper extremity put on shirt blouse ability scale	The scale which represents the extent the participant was able to put on a shirt or blouse, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C54330	C54330	Quality of Life - Upper extremity put on shirt blouse ability scale	The scale which represents the extent the participant was able to put on a shirt or blouse, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C54413	C54413	Quality of Life - Upper extremity wash dishes pots utensils by hand standing sink ability scale	The scale which represents the extent the participant was able to wash dishes, pots and utensils by hand while standing at a sink, as a part of the Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C54413	C54413	Quality of Life - Upper extremity wash dishes pots utensils by hand standing sink ability scale	The scale which represents the extent the participant was able to wash dishes, pots and utensils by hand while standing at a sink, as a part of the Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C54413	C54413	Quality of Life - Upper extremity wash dishes pots utensils by hand standing sink ability scale	The scale which represents the extent the participant was able to wash dishes, pots and utensils by hand while standing at a sink, as a part of the Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C54413	C54413	Quality of Life - Upper extremity wash dishes pots utensils by hand standing sink ability scale	The scale which represents the extent the participant was able to wash dishes, pots and utensils by hand while standing at a sink, as a part of the Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology

Displaying 12476 - 12500 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.