CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0300-C00004	C00004	Birth country ISO code	Code (ISO 3166-1 alpha-2 code) for country where the participant was born	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00005	C00005	Birth country name	Name for country where the participant was born	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00024	C00024	Language primary ISO code	Code (ISO 639-2) for the language the participant/subject speaks most often	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00025	C00025	Language primary text	Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00026	C00026	Language spoken Fluent text	Text for each language that the participant/subject speaks fluently	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00027	C00027	Language written Fluent text	Text for each language that the participant/subject writes fluently	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00028	C00028	Language spoken fluent ISO code	Code (ISO 639-2)for each language that the participant/subject speaks fluently	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00029	C00029	Language written fluent ISO code	Code (ISO 639-2) for each language that the participant/subject writes fluently	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00031	C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Core	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C17396	C17396	Sex genotype type	The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement	Core	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C18385	C18385	Birth time	Time the participant was born	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C18386	C18386	Less three years age value	Number of months from zero to thirty-six months of age	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C18732	C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C18751	C18751	Sex participant or subject genotype other text	The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement	Core	Demographics	False	Traumatic Brain Injury	Comprehensive
F0301-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0301-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0301-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Core	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0301-C00018	C00018	Education service type	Type of educational services received	Supplemental	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0301-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Core	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.