CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0328-C02410	C02410	Cisternal compression status	Status of asymmetry or obliteration of the normal configuration of the perimesencephalic, suprasellar, prepontine, or superior cerebellar cistern, and/or cisterna magna due to mass effect and/or brain swelling in the setting of trauma	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02413	C02413	Contusion findings type	Type of contusion findings in the image of the participant's brain	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02414	C02414	Contusion status	Status of a focal area of brain parenchymal disruption due to acute mechanical deformation	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02415	C02415	Contusion anatomic site	Anatomic site of contusion	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02420	C02420	Traumatic axonal injury status	Status of multiple, scattered, small hemorrhagic and/or non-hemorrhagic lesions in a more confined white matter distribution. For purposes of this database, TAI includes 1-3 foci of signal abnormality	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02422	C02422	Brain edema finding type	Further describes the brain edema	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02423	C02423	Brain edema extent type	Extent of the brain edema	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02424	C02424	Brain edema status	Status of an abnormal accumulation of water in the intracellular and/or extracellular spaces of the brain	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02425	C02425	Brain edema anatomic site	Anatomic site of the brain edema	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02428	C02428	Epidural hematoma anatomic site	Anatomic site of the epidural hematoma	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02430	C02430	Extraaxial hematoma status	Status of a collection of blood between the brain surface and the skull, but for which the exact site cannot be determined with certainty, and is not already classified as a more specific entity elsewhere in the data set	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02431	C02431	Extraaxial hematoma anatomic site	Anatomic site of the extraaxial hematoma	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02432	C02432	Extraaxial hematoma volume measurement	Measured volume in cubic centimeters of the extraaxial hematoma (calculated from length, width, maximal thickness)	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02433	C02433	Ventricle - fourth shift effacement measurement	Measured amount of fourth ventricle shift/effacement in mm (maximal distance from expected location in any direction)	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02438	C02438	Intracerebral hemorrhage findings type	Further describes the intracerebral hemorrhage	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02440	C02440	Intracerebral hemorrhage indicator	Indicator of a collection of confluent, relatively homogeneous blood within the brain parenchyma	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02441	C02441	Intracerebral hemorrhage anatomic site	Anatomic site of the intracerebral hemorrhage	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02442	C02442	Intracerebral hemorrhage entire lesion volume measurement	Measured volume of entire intracerebral hemorrhage including surrounding signal abnormalities	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02446	C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02451	C02451	Ischemia infarction hypoxic-ischemic injury status	Status of findings in tissue which sustains, for a variety of reasons, a deficit between substrate demand and delivery	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02452	C02452	Ischemia infarction hypoxic-ischemic injury anatomic site	Anatomic site of the ischemia/infarction/hypoxic-ischemic injury	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02454	C02454	Midline shift supratentorial measurement	Measured amount of midline shift in mm. Shift is measured at the foramen of Monro, or alternatively, where it is greatest	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02455	C02455	Midline shift supratentorial indicator	Displacement of the supratentorial midline structures, particularly the septum pellucidum, 2 mm or more due to mass effect of a focal traumatic lesion or brain swelling	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02456	C02456	Midline shift supratentorial displacement type	Side of the midline shift	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02457	C02457	Penetrating injury brain associate finding type	Findings related to penetrating injury	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.