CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02444 Intraventricular hemorrhage ventriculomegaly status

Status of ventriculomegaly (acute hydrocephalus)

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02447 Intraventricular hemorrhage anatomic site

Anatomic site of the intraventricular hemorrhage

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02450 Ischemia infarction hypoxic-ischemic injury extent type

Extent of the ischemia/infarction/hypoxic-ischemic injury

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02453 Ischemia infarction hypoxic-ischemic injury pattern type

Pattern of the ischemia/infarction/hypoxic-ischemic injury

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02462 Gunshot wound caliber number

Number of the caliber of the gun used

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02471 Subdural hematoma acute type

Type of acute subdural hematoma (SDH)

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02472 Subdural hematoma acute status

Status of a collection of acute blood between the arachnoid and the dura, typically (though not always) hyperdense with a crescent shape on CT. Mixed density may be seen if the collection contains unclotted blood, CSF admixture, and/or active extravasation. On MRI, the acute SDH is iso/hypointense on T1 and very hypointense on T2, GRE, and SW-imaging. Note: Please see additional categories below for subacute, chronic, and mixed collections if these better describe the lesion, or if the chronicity/timing is uncertain

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02475 Subdural hematoma subacute chronic findings type

Type of subacute or chronic subdural hematoma (SDH) findings

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02476 Subdural hematoma subacute chronic indicator

Indicator of a collection of non-acute blood between the arachnoid and the dura, typically (though not always) with a crescent shape.

Basic Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02480 Subdural hematoma mixed density CSF-like collection indicator

Indicator of a collection of inhomogeneous blood products between the arachnoid and the dura, typically (though not always) with a crescent shape, in which timing (e.g., acute vs. chronic or subacute) is indeterminate

Basic Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02491 Venous sinus injury status

Status of compression (>50%), occlusion, or laceration of a dural venous sinus due to trauma

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02500 Imaging brain assessment result

Result of the global assessment of brain imaging

Core Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02502 Intraventricular hemorrhage pattern type

Type of pattern of intraventricular hemorrhage associated findings

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02504 Brain edema volume measurement

Measured volume in cubic centimeters of the brain edema

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02505 Marshall CT classification code

Code for Marshall CT classification

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
C00025 Language primary text

Text for the language the participant/subject speaks most often

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
C00026 Language spoken Fluent text

Text for each language that the participant/subject speaks fluently

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
C00027 Language written Fluent text

Text for each language that the participant/subject writes fluently

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
C00029 Language written fluent ISO code

Code (ISO 639-2) for each language that the participant/subject writes fluently

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
C00208 Military USA service branch type

Branch of service in the U.S. military, not including the Commissioned Corps

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
C00220 Military USA rank category

Category that describes the participant's/subject's rank in the military

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
C00222 Job classification category

Category that classifies work performed by participant/subject

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.