CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C07545	Health and Behavior Inventory (HBI) - parent current tired easily scale	How often the parent thinks the patient/subject has gotten tired easily during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Acute Hospitalized
C07546	Health and Behavior Inventory (HBI) - Parent Current Version cognitive total score	Sum of cognitive items 1-11 (0-33), on parent current version of Health and Behavior Inventory (HBI)	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Acute Hospitalized
C07547	Health and Behavior Inventory (HBI) - Parent Current Version somatic total score	Sum of somatic items 12-20 (0-27), on parent current version of Health and Behavior Inventory (HBI)	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Acute Hospitalized
C07526	Health and Behavior Inventory (HBI) - parent current sustain attention trouble scale	How often the parent thinks the patient/subject has had trouble sustaining attention during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07527	Health and Behavior Inventory (HBI) - parent current easily distracted scale	How often the parent thinks the patient/subject has been easily distracted during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07528	Health and Behavior Inventory (HBI) - parent current concentration difficulty scale	How often the parent thinks the patient/subject has had difficulty concentrating during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07529	Health and Behavior Inventory (HBI) - parent current memory problem scale	How often the parent thinks the patient/subject has had problems remembering what he/she was told during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07530	Health and Behavior Inventory (HBI) - parent current direction difficulty scale	How often the parent thinks the patient/subject has had difficulty following directions during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07531	Health and Behavior Inventory (HBI) - parent current daydream scale	How often the parent thinks the patient/subject has tended to daydream during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07532	Health and Behavior Inventory (HBI) - parent current confusion scale	How often the parent thinks the patient/subject has gotten confused during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07533	Health and Behavior Inventory (HBI) - parent current forgetful scale	How often the parent thinks the patient/subject has been forgetful during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07534	Health and Behavior Inventory (HBI) - parent current completion difficulty scale	How often the parent thinks the patient/subject has had difficulty completing tasks during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07535	Health and Behavior Inventory (HBI) - parent current poor problem solve skill scale	How often the parent thinks the patient/subject has had poor problem-solving skills during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07536	Health and Behavior Inventory (HBI) - parent current learning problem scale	How often the parent thinks the patient/subject has had problems learning during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07537	Health and Behavior Inventory (HBI) - parent current headache frequency scale	How often the parent thinks the patient/subject has had headaches during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07538	Health and Behavior Inventory (HBI) - parent current dizziness scale	How often the parent thinks the patient/subject has felt dizzy during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07539	Health and Behavior Inventory (HBI) - parent current room spin scale	How often the parent thinks the patient/subject has had a feeling that the room is spinning during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07540	Health and Behavior Inventory (HBI) - parent current feel faint scale	How often the parent thinks the patient/subject has felt faint during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07541	Health and Behavior Inventory (HBI) - parent current blurred vision scale	How often the parent thinks the patient/subject has had blurred vision during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07542	Health and Behavior Inventory (HBI) - parent current double vision scale	How often the parent thinks the patient/subject has had double vision during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07543	Health and Behavior Inventory (HBI) - parent current nausea scale	How often the parent thinks the patient/subject has experienced nausea during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07544	Health and Behavior Inventory (HBI) - parent current tired frequency scale	How often the parent thinks the patient/subject has gotten tired a lot during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07545	Health and Behavior Inventory (HBI) - parent current tired easily scale	How often the parent thinks the patient/subject has gotten tired easily during the past week	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07546	Health and Behavior Inventory (HBI) - Parent Current Version cognitive total score	Sum of cognitive items 1-11 (0-33), on parent current version of Health and Behavior Inventory (HBI)	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology
C07547	Health and Behavior Inventory (HBI) - Parent Current Version somatic total score	Sum of somatic items 12-20 (0-27), on parent current version of Health and Behavior Inventory (HBI)	Supplemental	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Epidemiology

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.