CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 12871
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01021 Pediatric Glasgow Coma Scale (PGCS) - motor response score

Score for the participant's motor response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01022 Pediatric Glasgow Coma Scale (PGCS) - verbal response score

Score for the participant's verbal response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01023 Pupil shape right eye type

Type of shape of the pupil of the right eye

 Supplemental Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01024 Pupil shape left eye type

Type of shape of the pupil of the left eye

 Supplemental Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C18399 Glasgow Coma Scale (GCS) - Scale type

Type of Glasgow Coma Scale (GCS) used

 Supplemental Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01031 Alteration of consciousness verify type

The type of verification of alteration of consciousness of the participant/subject

 Supplemental Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Comprehensive
C01032 Loss of consciousness verification type

The type of verification of the participant/subject's loss of consciousness

 Supplemental Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Comprehensive
C01033 Post traumatic amnesia verify type

The type of verification of post-traumatic amnesia the participant/subject experienced

 Supplemental Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Comprehensive
C01037 Post traumatic amnesia indicator

The indicator for whether the participant/subject experienced any period of post-traumatic amnesia.

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Comprehensive
C01041 Alteration consciousness indicator

The indicator of whether the participant/subject experienced any period of alteration of consciousness (AOC).

 Supplemental Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Comprehensive
C01045 Alteration of consciousness duration range

The range of duration of alteration of consciousness the participant/subject experienced

 Supplemental Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Comprehensive
C01052 Loss of consciousness indicator

The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC)

 Supplemental Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Comprehensive
C01053 Loss of consciousness duration range

The range of duration of loss of consciousness the participant/subject experienced

 Core Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Comprehensive
C01054 Lucid interval indicator

The indicator of whether the participant/subject had a lucid interval, a delayed occurrence of loss of consciousness

 Supplemental Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Comprehensive
C01025 Orientation person result

Result of how the participant/subject responded to questions about himself/herself, such as name and birth date

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Comprehensive
C01026 Orientation place result

Result of how the participant/subject responded to questions about his/her current location

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Comprehensive
C01027 Orientation time result

Result of how the participant/subject responded to questions about today's date (e.g., date, month, year, day of week, time of day, season of year)

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Comprehensive
C01056 Traumatic brain injury symptom category

Category of traumatic brain injury symptom/sign displayed by the participant/subject

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Comprehensive
C01057 Traumatic Brain Injury symptom type

The types of Traumatic Brain Injury (TBI) symptoms or signs displayed by the participant/subject

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Comprehensive
C01058 Traumatic Brain Injury symptom indicator

Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Comprehensive
C01059 Traumatic brain injury symptom rating code

Code that describes overall how different the participant/subject is acting compared to his/her usual self

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Comprehensive
C01060 Traumatic brain injury worsen symptom cognitive indicator

Indicator of whether the reported physical, sleep-related, cognitive and/or emotional symptom worsens with cognitive activity

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Comprehensive
C01061 Traumatic brain injury worsen symptom physical indicator

Indicator of whether the reported physical, sleep-related, cognitive and/or emotional symptom worsens with physical activity

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Comprehensive
C01025 Orientation person result

Result of how the participant/subject responded to questions about himself/herself, such as name and birth date

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Acute Hospitalized
C01026 Orientation place result

Result of how the participant/subject responded to questions about his/her current location

 Supplemental Neurological Assessment: TBI Symptoms and Signs False Traumatic Brain Injury Acute Hospitalized
Displaying 401 - 425 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.