CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 12871
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C05462 Seizure duration type

Seizure described as intermittent or status epilepticus. Convulsive status epilepticus (CSE) is defined as either 2 or more convulsions without complete recovery of consciousness between seizures (intermittent CSE) or as a single prolonged seizure that lasts for at least 30 minutes (continuous CSE)

 Supplemental Second Insults and Other Complications False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C05464 Hyperventilation indicator

Indicator of hyperventilation. Hyperventilation is defined as rapid, deep breathing, possibly exceeding 40 breaths/minute

 Supplemental Second Insults and Other Complications False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C05465 Aspiration indicator

Indicator of foreign material breathed into the airway

 Supplemental Second Insults and Other Complications False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C04805 ICU discharge date time

Date and time the participant/subject was discharged from the intensive care unit (ICU) of the hospital

 Supplemental Discharge Status False Traumatic Brain Injury Comprehensive
C04806 ICU discharge destination type

Type of destination on completion of stabilization/evaluation in the intensive care unit (ICU) of the hospital

 Supplemental Discharge Status False Traumatic Brain Injury Comprehensive
C04807 Vital status

Status of participant/subject as alive or dead

 Supplemental Discharge Status False Traumatic Brain Injury Comprehensive
C04809 Hospital discharge destination type

Type of destination on completion of stabilization/evaluation in hospital

 Supplemental Discharge Status False Traumatic Brain Injury Comprehensive
C04812 Definitive clinical care post trauma location type

Indicates type of location where patient received definitive clinical care after the injury

 Supplemental Discharge Status False Traumatic Brain Injury Comprehensive
C04803 Emergency room discharge destination reason

Reason for choice of destination upon discharge from emergency room

 Supplemental ER Destination False Traumatic Brain Injury Comprehensive
C04811 Emergency room discharge destination type

Destination on completion of stabilization/evaluation in emergency room

 Supplemental ER Destination False Traumatic Brain Injury Comprehensive
C04803 Emergency room discharge destination reason

Reason for choice of destination upon discharge from emergency room

 Supplemental ER Destination False Traumatic Brain Injury Concussion/Mild TBI
C04811 Emergency room discharge destination type

Destination on completion of stabilization/evaluation in emergency room

 Supplemental ER Destination False Traumatic Brain Injury Concussion/Mild TBI
C04803 Emergency room discharge destination reason

Reason for choice of destination upon discharge from emergency room

 Supplemental ER Destination False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C04811 Emergency room discharge destination type

Destination on completion of stabilization/evaluation in emergency room

 Supplemental ER Destination False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01003 Pupil reactivity light right eye result

Result of testing of the contraction of the participant's/subject's right pupil when a bright light is shone on it from an angle

 Supplemental Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01004 Pupil reactivity light left eye result

Result of testing of the contraction of the participant's/subject's left pupil when a bright light is shone on it from an angle

 Supplemental Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01005 Pupil right eye measurement

Measurement of the right pupil in millimeters

 Supplemental Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01006 Pupil left eye measurement

Measurement of the left pupil in millimeters

 Supplemental Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01011 Glasgow Coma Scale (GCS) - confounders type

Type of confounders influencing participant's/subject's Glasgow Coma Scale (GCS) score

 Supplemental Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01016 Glasgow Coma Scale (GCS) - total score

Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01017 Pediatric Glasgow Coma Scale (PGCS) - total score

Score for the participant's total Pediatric Glasgow Coma Scale (PGCS) score of the 3 tests, eye, motor, and verbal responses. A score of less than 9 would indicate that that participant is in a severe coma while a score of greater than 9 is a mild or no coma at all

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01020 Pediatric Glasgow Coma Scale (PGCS) - eye response score

Score for the participant's eye response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
Displaying 376 - 400 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.