CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0307-C05401	C05401	Injury date reliability type	The type of reliability of the reported injury date	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05402	C05402	Injury time reliability type	The reliability of the reported time of injury	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05403	C05403	Injury date time estimation type	The type as related to the point in time estimated as injury date and time	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05405	C05405	Hospital presentation type	Whether the participant/subject was taken directly from the scene of accident to the study hospital (primary) or was first taken to a non-study hospital, and then transferred to the study hospital (secondary)	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05406	C05406	Hospital first treat arrival date time	Date (and time, if applicable and known) of arrival at the first hospital, if the participant/subject was transferred to the study center from another hospital	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05407	C05407	Study center arrival date time	Date (and time, if applicable and known) of arrival to study center	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05409	C05409	Injury presentation reason	Reason for presentation at study facility/reason for interface with medical provider	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05410	C05410	Injury presentation professional referral category	Category of professional that referred the participant/subject to seek medical care	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05411	C05411	Injury immediate medical service receive indicator	Indicator of whether initial medical services were received directly after injury	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05412	C05412	Injury immediate medical service received type	Type of initial medical services received directly after injury	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05413	C05413	Emergency medical care provider type	Type of provider of initial medical care directly after injury	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05414	C05414	Emergency medical care provider train type	Type of training by Emergency medical care provider	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05415	C05415	Emergency service type	Branch of service involved at the accident scene	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05416	C05416	Emergency service response time duration	Duration of time between injury and arrival of emergency services	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05417	C05417	Emergency service time injury scene duration	Duration of time between arrival and departure of emergency services	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05418	C05418	Hospital transport type	Type of transportation from injury scene to hospital	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
F0307-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	Core	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0307-C05401	C05401	Injury date reliability type	The type of reliability of the reported injury date	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0307-C05402	C05402	Injury time reliability type	The reliability of the reported time of injury	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0307-C05403	C05403	Injury date time estimation type	The type as related to the point in time estimated as injury date and time	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0307-C05405	C05405	Hospital presentation type	Whether the participant/subject was taken directly from the scene of accident to the study hospital (primary) or was first taken to a non-study hospital, and then transferred to the study hospital (secondary)	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0307-C05406	C05406	Hospital first treat arrival date time	Date (and time, if applicable and known) of arrival at the first hospital, if the participant/subject was transferred to the study center from another hospital	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0307-C05407	C05407	Study center arrival date time	Date (and time, if applicable and known) of arrival to study center	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0307-C05409	C05409	Injury presentation reason	Reason for presentation at study facility/reason for interface with medical provider	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0307-C05410	C05410	Injury presentation professional referral category	Category of professional that referred the participant/subject to seek medical care	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.