CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C07129	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Friends visit month value	Number of friends the subject visits per month, as part of the Craig Handicap and Assessment Reporting Technique (CHART-SF)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07130	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Strangers conversation month indicator	Indicator of how often the subject spoke to strangers in the last month, as part of the Craig Handicap and Assessment Reporting Technique (CHART-SF)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07131	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Combined family income category	Category of subject and the subject's family combined income in the last year, as part of the Craig Handicap and Assessment Reporting Technique (CHART-SF)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07132	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Unreimbursed medical care expenses category	Category of how much money the subject spent for medical care expenses last year and did not get reimbursed for, as part of the Craig Handicap and Assessment Reporting Technique (CHART-SF)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07133	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Physical Independence Score	Total physical independence score (0-100)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07134	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Cognitive Independence Score	Total cognitive independence score (0-100)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07135	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Mobility Score	Total mobility score (0-100)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07136	Craig Handicap and Assessment Reporting Technique (CHART-SF) -Occupation Score	Total occupation score (0-100)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07137	Craig Handicap and Assessment Reporting Technique (CHART-SF) -Social Integration Score	Total social integration score (0-100)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07138	Craig Handicap and Assessment Reporting Technique (CHART-SF) -Economic Self Sufficiency Score	Total economic self-sufficiency score (0-100)	Basic	Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C07526	Health and Behavior Inventory (HBI) - parent current sustain attention trouble scale	How often the parent thinks the patient/subject has had trouble sustaining attention during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07527	Health and Behavior Inventory (HBI) - parent current easily distracted scale	How often the parent thinks the patient/subject has been easily distracted during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07528	Health and Behavior Inventory (HBI) - parent current concentration difficulty scale	How often the parent thinks the patient/subject has had difficulty concentrating during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07529	Health and Behavior Inventory (HBI) - parent current memory problem scale	How often the parent thinks the patient/subject has had problems remembering what he/she was told during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07530	Health and Behavior Inventory (HBI) - parent current direction difficulty scale	How often the parent thinks the patient/subject has had difficulty following directions during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07531	Health and Behavior Inventory (HBI) - parent current daydream scale	How often the parent thinks the patient/subject has tended to daydream during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07532	Health and Behavior Inventory (HBI) - parent current confusion scale	How often the parent thinks the patient/subject has gotten confused during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07533	Health and Behavior Inventory (HBI) - parent current forgetful scale	How often the parent thinks the patient/subject has been forgetful during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07534	Health and Behavior Inventory (HBI) - parent current completion difficulty scale	How often the parent thinks the patient/subject has had difficulty completing tasks during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07535	Health and Behavior Inventory (HBI) - parent current poor problem solve skill scale	How often the parent thinks the patient/subject has had poor problem-solving skills during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07536	Health and Behavior Inventory (HBI) - parent current learning problem scale	How often the parent thinks the patient/subject has had problems learning during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07537	Health and Behavior Inventory (HBI) - parent current headache frequency scale	How often the parent thinks the patient/subject has had headaches during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07538	Health and Behavior Inventory (HBI) - parent current dizziness scale	How often the parent thinks the patient/subject has felt dizzy during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07539	Health and Behavior Inventory (HBI) - parent current room spin scale	How often the parent thinks the patient/subject has had a feeling that the room is spinning during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI
C07540	Health and Behavior Inventory (HBI) - parent current feel faint scale	How often the parent thinks the patient/subject has felt faint during the past week	Basic	Health and Behavior Inventory (HBI) Parent Current Version	True	Traumatic Brain Injury	Concussion/Mild TBI

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.