CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 12871
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core Significant Medical History False Traumatic Brain Injury Comprehensive
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core Significant Medical History False Traumatic Brain Injury Comprehensive
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core Significant Medical History False Traumatic Brain Injury Acute Hospitalized
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core Significant Medical History False Traumatic Brain Injury Acute Hospitalized
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core Significant Medical History False Traumatic Brain Injury Epidemiology
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core Significant Medical History False Traumatic Brain Injury Epidemiology
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core Significant Medical History False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core Significant Medical History False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C05400 Injury date time

Date (and time, if applicable and known) of injury

 Core Injury Presentation - Early/Late False Traumatic Brain Injury Comprehensive
C17404 Injury elapsed time

The elapsed time (in minutes) from the time of injury

 Core Injury Presentation - Early/Late False Traumatic Brain Injury Comprehensive
C05400 Injury date time

Date (and time, if applicable and known) of injury

 Core Injury Presentation - Early/Late False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C17404 Injury elapsed time

The elapsed time (in minutes) from the time of injury

 Core Injury Presentation - Early/Late False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C05421 Injury ICD external cause code

Code to classify the external cause of the injury

 Core Type, Place, Cause and Mechanism of Injury False Traumatic Brain Injury Comprehensive
C18609 ICD revision number

Number of the International Classification of Diseases (ICD) used to obtain the code

 Core Type, Place, Cause and Mechanism of Injury False Traumatic Brain Injury Comprehensive
C58469 TBI cause type

Broad classification of the type of traumatic brain injury experienced by participant/subject

 Core Type, Place, Cause and Mechanism of Injury False Traumatic Brain Injury Comprehensive
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Core Baseline Risk Assessment False Traumatic Brain Injury Comprehensive
C01021 Pediatric Glasgow Coma Scale (PGCS) - motor response score

Score for the participant's motor response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18

 Core Baseline Risk Assessment False Traumatic Brain Injury Comprehensive
C02469 Subarachnoid hemorrhage indicator

Indicator of macroscopic blood located between the brain surface and the arachnoid membrane. On CT and MR, the blood in this location will follow the contour of the sulci and cisterns. Acute SAH is hyperdense on CT and hyperintense on FLAIR MR imaging

 Core Baseline Risk Assessment False Traumatic Brain Injury Comprehensive
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01016 Glasgow Coma Scale (GCS) - total score

Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01017 Pediatric Glasgow Coma Scale (PGCS) - total score

Score for the participant's total Pediatric Glasgow Coma Scale (PGCS) score of the 3 tests, eye, motor, and verbal responses. A score of less than 9 would indicate that that participant is in a severe coma while a score of greater than 9 is a mild or no coma at all

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01020 Pediatric Glasgow Coma Scale (PGCS) - eye response score

Score for the participant's eye response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
C01021 Pediatric Glasgow Coma Scale (PGCS) - motor response score

Score for the participant's motor response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18

 Core Neurological Assessment: Glasgow Coma Scale (GCS) and Pupils False Traumatic Brain Injury Comprehensive
Displaying 326 - 350 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.