CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 12871
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

 Basic Death False Traumatic Brain Injury Acute Hospitalized
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant/subject's death

 Basic Death False Traumatic Brain Injury Acute Hospitalized
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

 Basic Death False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant/subject's death

 Basic Death False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C01031 Alteration of consciousness verify type

The type of verification of alteration of consciousness of the participant/subject

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Acute Hospitalized
C01032 Loss of consciousness verification type

The type of verification of the participant/subject's loss of consciousness

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Acute Hospitalized
C01033 Post traumatic amnesia verify type

The type of verification of post-traumatic amnesia the participant/subject experienced

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Acute Hospitalized
C01037 Post traumatic amnesia indicator

The indicator for whether the participant/subject experienced any period of post-traumatic amnesia.

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Acute Hospitalized
C01041 Alteration consciousness indicator

The indicator of whether the participant/subject experienced any period of alteration of consciousness (AOC).

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Acute Hospitalized
C01045 Alteration of consciousness duration range

The range of duration of alteration of consciousness the participant/subject experienced

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Acute Hospitalized
C01052 Loss of consciousness indicator

The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC)

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Acute Hospitalized
C01031 Alteration of consciousness verify type

The type of verification of alteration of consciousness of the participant/subject

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Concussion/Mild TBI
C01032 Loss of consciousness verification type

The type of verification of the participant/subject's loss of consciousness

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Concussion/Mild TBI
C01033 Post traumatic amnesia verify type

The type of verification of post-traumatic amnesia the participant/subject experienced

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Concussion/Mild TBI
C01037 Post traumatic amnesia indicator

The indicator for whether the participant/subject experienced any period of post-traumatic amnesia.

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Concussion/Mild TBI
C01041 Alteration consciousness indicator

The indicator of whether the participant/subject experienced any period of alteration of consciousness (AOC).

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Concussion/Mild TBI
C01045 Alteration of consciousness duration range

The range of duration of alteration of consciousness the participant/subject experienced

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Concussion/Mild TBI
C01052 Loss of consciousness indicator

The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC)

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Concussion/Mild TBI
C01031 Alteration of consciousness verify type

The type of verification of alteration of consciousness of the participant/subject

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C01032 Loss of consciousness verification type

The type of verification of the participant/subject's loss of consciousness

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C01033 Post traumatic amnesia verify type

The type of verification of post-traumatic amnesia the participant/subject experienced

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C01037 Post traumatic amnesia indicator

The indicator for whether the participant/subject experienced any period of post-traumatic amnesia.

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C01041 Alteration consciousness indicator

The indicator of whether the participant/subject experienced any period of alteration of consciousness (AOC).

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C01045 Alteration of consciousness duration range

The range of duration of alteration of consciousness the participant/subject experienced

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C01052 Loss of consciousness indicator

The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC)

 Basic Neurological Assessment: LOC, PTA, and AOC False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
Displaying 276 - 300 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.