CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 12871
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20346 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current participation social leisure activity pre-injury indicator

Indicates if the child is able to resume regular social and leisure activities

Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20347 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity unable participate indicator

Indicator related to being unable to participate in social and leisure activities

Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20348 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity much decrease participation indicator

Indicator related to being much less able to participate in social and leisure activities

Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20349 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity little decrease participation indicator

The indicator related to a bit less participate in social and leisure activities

Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20350 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Family friendship psychological problem indicator

Indicates if there are psychological problems that have resulted in ongoing disruption with respect to either family or friendships

Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20351 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent disruption family friendship type

The extent of disruption or strain in family and friendship due to injury

Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20352 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Return normal life other problem indicator

The indicator related to other problem in returning to normal life

Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07442 Satisfaction with Life Scale (SWLS) - Life close ideal score

Score of closeness between the subject's life and the ideal life, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Concussion/Mild TBI
C07443 Satisfaction with Life Scale (SWLS) - Life condition excellence score

Score of subject's life condition, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Concussion/Mild TBI
C07444 Satisfaction with Life Scale (SWLS) - Life satisfaction score

Score of subject's satisfaction with life, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Concussion/Mild TBI
C07445 Satisfaction with Life Scale (SWLS) - Life achievement score

Score of subject's achievement in life, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Concussion/Mild TBI
C07446 Satisfaction with Life Scale (SWLS) - Life change score

Score of subject's wish to change anything, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Concussion/Mild TBI
C07447 Satisfaction with Life Scale (SWLS )- Total score

Total sum of the responses to the five items (5-35), as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Concussion/Mild TBI
C07442 Satisfaction with Life Scale (SWLS) - Life close ideal score

Score of closeness between the subject's life and the ideal life, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07443 Satisfaction with Life Scale (SWLS) - Life condition excellence score

Score of subject's life condition, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07444 Satisfaction with Life Scale (SWLS) - Life satisfaction score

Score of subject's satisfaction with life, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07445 Satisfaction with Life Scale (SWLS) - Life achievement score

Score of subject's achievement in life, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07446 Satisfaction with Life Scale (SWLS) - Life change score

Score of subject's wish to change anything, as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07447 Satisfaction with Life Scale (SWLS )- Total score

Total sum of the responses to the five items (5-35), as part of the Satisfaction with Life Scale (SWLS)

Basic Satisfaction with Life Scale Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C04807 Vital status

Status of participant/subject as alive or dead

Basic Post Discharge Status Traumatic Brain Injury Acute Hospitalized
C04813 Return work school status

Status of participant's/subject's return to work and/or school

Basic Post Discharge Status Traumatic Brain Injury Epidemiology
C04814 Residence type

Type of residence where the participant/subject is currently living

Basic Post Discharge Status Traumatic Brain Injury Epidemiology
C18747 Residence other text

The free-text field related to 'Residence type' specifying other text. Type of residence where the participant/subject is currently living

Basic Post Discharge Status Traumatic Brain Injury Epidemiology
C04814 Residence type

Type of residence where the participant/subject is currently living

Basic Post Discharge Status Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C18747 Residence other text

The free-text field related to 'Residence type' specifying other text. Type of residence where the participant/subject is currently living

Basic Post Discharge Status Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
Displaying 251 - 275 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.