CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 25898
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C05127 Intracranial surgery indicator

Indicator of whether the participant/subject underwent intracranial procedures as part of treatment

 Basic ER/Admission Therapeutic Procedures False Traumatic Brain Injury Concussion/Mild TBI
C05127 Intracranial surgery indicator

Indicator of whether the participant/subject underwent intracranial procedures as part of treatment

 Basic ER/Admission Therapeutic Procedures False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C07147 Disability Rating Scale (DRS) - eye opening scale

Scale for the participant's ability to open the eye as part of the Disability Rating Scale (DRS)

 Basic Disability Rating Scale (DRS) True Traumatic Brain Injury Epidemiology
C07148 Disability Rating Scale (DRS) - communication ability scale

Scale for the participant's communication ability as part of the Disability Rating Scale (DRS)

 Basic Disability Rating Scale (DRS) True Traumatic Brain Injury Epidemiology
C07149 Disability Rating Scale (DRS) - Motor response disability scale

Motor response disability indicator, as part of the Disability Rating Scale (DRS)

 Basic Disability Rating Scale (DRS) True Traumatic Brain Injury Epidemiology
C07150 Disability Rating Scale (DRS) - Feeding disability scale

Feeding (Cognitive ability only) disability indicator, as part of the Disability Rating Scale (DRS)

 Basic Disability Rating Scale (DRS) True Traumatic Brain Injury Epidemiology
C07151 Disability Rating Scale (DRS) - Toileting disability scale

Toileting (Cognitive ability only) disability indicator, as part of the Disability Rating Scale (DRS)

 Basic Disability Rating Scale (DRS) True Traumatic Brain Injury Epidemiology
C07152 Disability Rating Scale (DRS) - Grooming disability scale

Grooming (Cognitive ability only) disability indicator, as part of the Disability Rating Scale (DRS)

 Basic Disability Rating Scale (DRS) True Traumatic Brain Injury Epidemiology
C07153 Disability Rating Scale (DRS) - Function level scale

Level of functioning (Physical, mental, emotional, or social function) disability indicator, as part of the Disability Rating Scale (DRS)

 Basic Disability Rating Scale (DRS) True Traumatic Brain Injury Epidemiology
C07154 Disability Rating Scale (DRS) - Employability patient scale

Employability (as a full time worker, homemaker, or student) disability indicator, as part of the Disability Rating Scale (DRS)

 Basic Disability Rating Scale (DRS) True Traumatic Brain Injury Epidemiology
C07155 DRS Total Score

Total Score (0-29)

 Basic Disability Rating Scale (DRS) True Traumatic Brain Injury Epidemiology
C07195 Health and Behavior Inventory (HBI) - child trouble paying attention scale

How often participant/subject has trouble paying attention during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07196 Health and Behavior Inventory (HBI) - child distract easily scale

How often participant/subject gets distracted easily during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07197 Health and Behavior Inventory (HBI) - child concentration difficulty scale

How often participant/subject has a hard time concentrating during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07198 Health and Behavior Inventory (HBI) - child memory problem scale

How often participant/subject has problems remembering things people tell during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07199 Health and Behavior Inventory (HBI) - child direction problem scale

How often participant/subject has problems following directions during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07200 Health and Behavior Inventory (HBI) - child daydream scale

How often participant/subject daydreams too much during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07201 Health and Behavior Inventory (HBI) - child confusion scale

How often participant/subject gets confused during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07202 Health and Behavior Inventory (HBI) - child forget scale

How often participant/subject forgets things during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07203 Health and Behavior Inventory (HBI) - child finish problem scale

How often participant/subject has problems finishing things during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07204 Health and Behavior Inventory (HBI) - child determine thing trouble scale

How often participant/subject has trouble figuring things out during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07205 Health and Behavior Inventory (HBI) - child learn new thing difficulty scale

How often it is hard for participant/subject to learn new things during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07206 Health and Behavior Inventory (HBI) - child headache frequency scale

How often participant/subject has headaches during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07207 Health and Behavior Inventory (HBI) - child dizziness scale

How often participant/subject feels dizzy during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
C07208 Health and Behavior Inventory (HBI) - child room spinning scale

How often participant/subject feels like the room is spinning during the last week as part of Health and Behavior Inventory (HBI)

 Basic Health and Behavior Inventory (HBI) Child Version True Traumatic Brain Injury Epidemiology
Displaying 26 - 50 of 25898

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.