CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Comprehensive
C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Comprehensive
C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Comprehensive
C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Acute Hospitalized
C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Acute Hospitalized
C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Acute Hospitalized
C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Epidemiology
C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Epidemiology
C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Epidemiology
C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Concussion/Mild TBI
C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Concussion/Mild TBI
C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Concussion/Mild TBI
C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
C05422	Injury cause type	The type as related to the classification of the external cause of the injury	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
C05424	TBI mechanism type	Type of mechanism/forces causing the traumatic brain injury	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
C05443	Body armor indicator	Indicator of whether body armor was worn at the time of the injury	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
C18397	Influence alcohol likelihood type	Indicator for the likelihood the subject was under the influence of alcohol	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
C01037	Post traumatic amnesia indicator	The indicator for whether the participant/subject experienced any period of post-traumatic amnesia.	Basic	Neurological Assessment: LOC, PTA, and AOC	False	Traumatic Brain Injury	Comprehensive
C05127	Intracranial surgery indicator	Indicator of whether the participant/subject underwent intracranial procedures as part of treatment	Basic	ER/Admission Therapeutic Procedures	False	Traumatic Brain Injury	Comprehensive
C05127	Intracranial surgery indicator	Indicator of whether the participant/subject underwent intracranial procedures as part of treatment	Basic	ER/Admission Therapeutic Procedures	False	Traumatic Brain Injury	Acute Hospitalized
C05127	Intracranial surgery indicator	Indicator of whether the participant/subject underwent intracranial procedures as part of treatment	Basic	ER/Admission Therapeutic Procedures	False	Traumatic Brain Injury	Epidemiology

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.