CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1973-C52090	C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Comprehensive
F1973-C52100	C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Comprehensive
F1973-C52256	C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Comprehensive
F1973-C52090	C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Acute Hospitalized
F1973-C52100	C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Acute Hospitalized
F1973-C52256	C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Acute Hospitalized
F1973-C52090	C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Epidemiology
F1973-C52100	C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Epidemiology
F1973-C52256	C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Epidemiology
F1973-C52090	C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Concussion/Mild TBI
F1973-C52100	C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Concussion/Mild TBI
F1973-C52256	C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Concussion/Mild TBI
F1973-C52090	C52090	Child Behavior Checklist (CBCL) - Other physical problems without known medical cause scale	Scale for whether the child has other physical problems without known medical cause, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1973-C52100	C52100	Child Behavior Checklist (CBCL) - Reading, English, or Language Arts academic standing scale	Scale for how well the child is doing academically in Reading, English, or Language Arts, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1973-C52256	C52256	Child Behavior Checklist (CBCL) - Repeats certain acts over and over, compulsions scale	Scale for whether the child repeats certain acts over and over, compulsions, as part of the Child Behavior Checklist (CBCL)		Child Behavior Checklist (CBCL) Problem Behaviors subscale	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0301-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0301-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0308-C05422	C05422	Injury cause type	The type as related to the classification of the external cause of the injury	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
F0308-C05424	C05424	TBI mechanism type	Type of mechanism/forces causing the traumatic brain injury	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
F0308-C05443	C05443	Body armor indicator	Indicator of whether body armor was worn at the time of the injury	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
F0308-C18397	C18397	Influence alcohol likelihood type	Indicator for the likelihood the subject was under the influence of alcohol	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
F0315-C01037	C01037	Post traumatic amnesia indicator	The indicator for whether the participant/subject experienced any period of post-traumatic amnesia.	Basic	Neurological Assessment: LOC, PTA, and AOC	False	Traumatic Brain Injury	Comprehensive
F0332-C05127	C05127	Intracranial surgery indicator	Indicator of whether the participant/subject underwent intracranial procedures as part of treatment	Basic	ER/Admission Therapeutic Procedures	False	Traumatic Brain Injury	Comprehensive
F0332-C05127	C05127	Intracranial surgery indicator	Indicator of whether the participant/subject underwent intracranial procedures as part of treatment	Basic	ER/Admission Therapeutic Procedures	False	Traumatic Brain Injury	Acute Hospitalized
F0332-C05127	C05127	Intracranial surgery indicator	Indicator of whether the participant/subject underwent intracranial procedures as part of treatment	Basic	ER/Admission Therapeutic Procedures	False	Traumatic Brain Injury	Epidemiology

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.