CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1159-C14190	C14190	Stroke symptoms discover location type	Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14191	C14191	Last known to be well date and time	The date and time at which the patient was last known to be without the signs and symptoms of the current stroke or at his or her prior baseline. This element captures the date and time for last known well that is determined to be the most accurate after all the data have been evaluated and additional witnesses interviewed (if applicable)	Supplemental-Highly Recommended	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14192	C14192	Symptom awaken discover indicator	Indicate if symptoms were discovered shortly upon awakening from sleep	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14194	C14194	Hospital not admitted but transferred to another acute care hospital indicator	Whether a patient presented to the Emergency Department of the study hospital and was transferred to an outside hospital. Was patient evaluated in the ED for acute Stroke or TIA and subsequently transferred to another acute care hospital rather than being admitted to your hospital?	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14195	C14195	Hospital point of origin for admission or visit type	Documents whether the patient originated from the community or was transferred from one hospital to the study hospital	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14196	C14196	Hospital location patient first received care type	Area of the hospital the patient first evaluated	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14197	C14197	Hospital care upon admission type	Where the patient was cared for and by whom (Where was the patient cared for and by what service?)	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14198	C14198	Hospital presumptive admission diagnosis type	The presumptive diagnosis tries to identify presumptive diagnosis at the time of hospital admission	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14199	C14199	Stroke complication of medical/ surgical procedure or therapy likelihood type	Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)	Exploratory	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C14625	C14625	Hospital arrival date and time	Date (and time, if applicable and known) the participant/subject arrived at the hospital	Supplemental-Highly Recommended	Hospital Arrival/Admission	False	Stroke	Stroke
F1159-C18686	C18686	Hospital transport other text	The free-text field related to 'Hospital transport type' specifying other text. Type of transportation from injury scene to hospital	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1160-C14178	C14178	Stroke symptom type	The symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14179	C14179	Stroke symptom experienced indicator	Indicates whether or not the symptom was experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14181	C14181	Stroke symptom resolution date and time	Date (and time, if applicable and known) the Stroke symptom resolved	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14182	C14182	Stroke symptom duration range	The range of approximate stroke symptom duration. This is especially important if the diagnosis is Transient Ischemic Attack (TIA)	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14183	C14183	Stroke symptom timing in relation to stroke onset category	This element captures the time course of a symptom associated with the index stroke. The element is intended to be recorded for each symptom separately	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14187	C14187	Stroke symptom pediatric-specific type	The pediatric-specific symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14188	C14188	Neonatal level of consciousness type	Type of abnormal level of consciousness of the neonate	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14189	C14189	Neonatal encephalopathy level type	Level of neonatal encephalopathy according to the Sarnat Staging	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C18905	C18905	Stroke symptom other text	The free-text field related to 'Stroke symptom type' specifying other text. The symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C18906	C18906	Stroke symptom pediatric-specific other text	The free-text field related to 'Stroke symptom pediatric-specific type' specifying other text	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1161-C01000	C01000	Glasgow Coma Scale (GCS) - eye response scale	Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
F1161-C01001	C01001	Glasgow Coma Scale (GCS) - motor response scale	Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
F1161-C01002	C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
F1161-C01016	C01016	Glasgow Coma Scale (GCS) - total score	Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.