CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

1543 results.

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Operations

Selected 18 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2832-C13206	C13206	Generalized Anxiety Disorder (GAD-7) - not stop worry scale	Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2832-C13207	C13207	Generalized Anxiety Disorder (GAD-7) - worry too much scale	Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2832-C13208	C13208	Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale	Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2832-C13209	C13209	Generalized Anxiety Disorder (GAD-7) - restless scale	Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2832-C13210	C13210	Generalized Anxiety Disorder (GAD-7) - easily annoyed scale	Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2832-C13211	C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2832-C13212	C13212	Generalized Anxiety Disorder (GAD-7) - total score	Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2836-C54688	C54688	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale	Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C54689	C54689	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale	Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C54690	C54690	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale	Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C54691	C54691	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale	Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C54692	C54692	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale	Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C54693	C54693	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale	Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C54694	C54694	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale	Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C54695	C54695	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale	Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C58680	C58680	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale	Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2836-C58681	C58681	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F1056-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke

1543 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.