CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1501 - 1525 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54695 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale

Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C14630 Anticoagulant agent in hospital type

Type(s) of anticoagulant agents received during the acute hospital stay

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

Supplemental-Highly Recommended Perfusion and Penumbral Imaging Stroke Stroke
C14258 Perinatal stroke type

Indicates the type of clinical stroke suffered by the neonate

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C07437 Patient Health Questionnaire (PHQ) - Concentration impairment score

Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C13879 Imaging modality vessel imaging angiography type

Indicates imaging modality for vessel imaging angiography

Supplemental-Highly Recommended Vessel Imaging Angiography Stroke Stroke
C58821 Pregnancy or delivery risk factor illness other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other illness text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C58958 Lipid lower agent stroke discharge prescribe type

Type(s) of lipid lowering agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C58751 Specimen expiration date

Date when the specimen will expire, if applicable

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C11083 Delivery extraction type

Type of extraction used to assist with the delivery of the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C55747 Specimen insulate shipment box indicator

The indicator related to whether the specimen insulated in a shipment box

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C01712 Lab specimen type

Type of specimen collected for the laboratory test

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C06108 Tobacco smoke pack-year value

If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C58952 Antiplatelet agent stroke discharge prescribe type

Type(s) of antiplatelet agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C54751 Cerebrospinal fluid collection anatomic site

The anatomic site related to collection of cerebrospinal fluid (CSF)

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58737 Blood collection tube number

Enter the number of collection tubes used

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55323 Specimen normal control collected indicator

Indicator of whether or not normal or control samples were collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
Displaying 1501 - 1525 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.