CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10559 Spontaneous miscarriage count

Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11062 Maternal delivery age value

Mother's age at the time she gave birth to the participant/subject

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11066 Pregnancy or delivery risk factor type

Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11067 Pregnancy or delivery risk factor indicator

Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11078 Delivery mode type

Type of delivery mode of the neonate

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11079 Neonate delivery route type

Route of delivery of the neonate

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11080 Delivery modality type

Type of modality of the participant/subject's intrauterine orientation at delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11081 Delivery caesarean timing status

Status of the caesarean delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C11083 Delivery extraction type

Type of extraction used to assist with the delivery of the participant/subject

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C14151 Pregnancy medical terminations count

Number of medical terminations (abortions)

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C18819 Pregnancy or delivery risk factor other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C18829 Delivery mode induced other text

The free-text field related to 'Delivery mode type' for induced delivery mode. Type of delivery mode of the neonate

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C08147 Data source

Source of the data provided on the case report form

 Supplemental History Data Source and Reliability False Stroke Stroke
C11133 History data not obtained reason

Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

 Supplemental History Data Source and Reliability False Stroke Stroke
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

 Supplemental History Data Source and Reliability False Stroke Stroke
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

 Supplemental History Data Source and Reliability False Stroke Stroke
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

 Supplemental History Data Source and Reliability False Stroke Stroke
C05130 Therapy or rehabilitation type

Type of therapy or rehabilitation services received by the participant/subject

 Supplemental Prior Functional Status False Stroke Stroke
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Prior Functional Status False Stroke Stroke
C11084 Developmental and academic history type

Specific aspects of the participant's/subject's pre-morbid developmental status and academic function

 Supplemental Prior Functional Status False Stroke Stroke
C11085 Developmental and academic history indicator

Whether the participant/subject has a history of the specific aspect of the pre-morbid developmental status or academic function

 Supplemental Prior Functional Status False Stroke Stroke
C11086 School placement type

The description of the type of education the participant/subject receives with details of being with or without assistance

 Supplemental Prior Functional Status False Stroke Stroke
C14639 Ambulatory status

Status that reflects the participant's ability to walk

 Core Prior Functional Status False Stroke Stroke
Displaying 151 - 175 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.