CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1426 - 1450 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C13191 Walking speed value

Comfortable walking speed is assessed in meters per second (m/sec) and is measured using the time to complete the central 4 meters of a 6 meter line

Supplemental-Highly Recommended Walking Speed Stroke Stroke
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C57923 Blood collection tube additive type

Type of additives used in blood collection tube

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C14151 Pregnancy medical terminations count

Number of medical terminations (abortions)

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C58823 Pregnancy or delivery risk factor fetal abnormal recognize in utero text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying the fetal abnormality(ies) recognized in utero. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C13750 Imaging study ID number

Unique identification number assigned to the study or assessment session

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58746 Specimen centrifugation date and time

Date (and time if applicable and known) when the specimen was centrifuged

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C01522 Height measurement

Measurement of participant's height

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C14191 Last known to be well date and time

The date and time at which the patient was last known to be without the signs and symptoms of the current stroke or at his or her prior baseline. This element captures the date and time for last known well that is determined to be the most accurate after all the data have been evaluated and additional witnesses interviewed (if applicable)

Supplemental-Highly Recommended Hospital Arrival/Admission Stroke Stroke
C14213 Diagnosis principal discharge code

The principal diagnosis is defined in the Uniform Hospital Discharge Data Set (UHDDS) as "that condition established after study to be chiefly responsible for occasioning the admission of the patient to the hospital for care."

Supplemental-Highly Recommended Hospital Discharge Stroke Stroke
C14625 Hospital arrival date and time

Date (and time, if applicable and known) the participant/subject arrived at the hospital

Supplemental-Highly Recommended Hospital Arrival/Admission Stroke Stroke
C58955 Antihypertensive agent stroke discharge prescribe other text

The free-text field related to 'Antihypertensive agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C11067 Pregnancy or delivery risk factor indicator

Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58740 Specimen collection grossly bloody indicator

Indicate whether the specimen collection was grossly bloody

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C55329 Specimen storage barcode system used indicator

The indicator related to whether a specimen storage barcode system was used

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C14220 Clinical stroke tissue-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C54695 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale

Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58407 Blood collection tube volume value

Volume of blood collection tube

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54743 Specimen biologic source type

The type of biologic specimen collection source

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
Displaying 1426 - 1450 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.