CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10543 Cancer head or neck radiation treatment indicator

Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation

Exploratory Medical History Stroke Stroke
C14123 Country of residence name

Country where the participant/subject currently lives

Exploratory Demographics Stroke Stroke
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

Exploratory Social Status Stroke Stroke
C13515 Orientation findings result

Assess orientation using the Scandinavian Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C13206 Generalized Anxiety Disorder (GAD-7) - not stop worry scale

Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Stroke Stroke
C07381 PTSD Checklist Civilian (PCL-C) - Activities indicator

Indicator of whether the subject experiences avoiding activities or situations because they reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C07389 PTSD Checklist Civilian (PCL-C) - Difficulty concentrating indicator

Indicator of whether the subject experiences having difficulty concentrating, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C55349 Microdialysis cerebral Ictus monitoring interval

The period of time elapsed between ictus and monitoring for cerebral microdialysis

Exploratory Biospecimen Collection and Processing Stroke Stroke
C12610 Death location type

Type of location where the participant/subject died

Exploratory Death Stroke Stroke
C55362 Multiplex platform normalization technique text

Free-text field to describe normalization techniques for multiplex platforms

Exploratory Biospecimen Collection and Processing Stroke Stroke
C54772 Imaging aneurysm wall shear stress minimum measurement

Measurement of the minimum wall shear stress of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C18827 Gastrointestinal therapy nutrition supplement other text

The free-text field related to 'Gastrointestinal therapy nutrition supplement type' specifying other text. Type(s) of nutritional supplement(s) being taken by the participant/subject

Exploratory Prior and Concomitant Medications Stroke Stroke
C58890 Imaging aneurysm kinetic energy mean unit of measure

The unit of measure of the mean kinetic energy of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C52706 Mitochondrial encephalomyopathy lactic acidosis stroke like episodes indicator

The indicator related to whether the participant/subject has or had mitochondrial encephalomyopathy, lactic acidosis and stroke-like episodes (MELAS)

Exploratory Medical History Stroke Stroke
C59000 Medication L-asparaginase current former take indicator

The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase

Exploratory Prior and Concomitant Medications Stroke Stroke
C58931 Menopause treatment type

Type of treatment the participant/subject is receiving or has received for menopause

Exploratory Medical History Stroke Stroke
C58782 Race expanded maternal category

Category of race(s) or region(s) the participant/subject's mother most closely identifies with

Exploratory Demographics Stroke Stroke
C14199 Stroke complication of medical/ surgical procedure or therapy likelihood type

Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)

Exploratory Hospital Arrival/Admission Stroke Stroke
C58852 IV tPA not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Exploratory Thrombolytic/Reperfusion Therapies Stroke Stroke
C19482 Paid work hour week count

The number of hours per week in paid work

Exploratory Social Status Stroke Stroke
C13516 Hand strength findings result

Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C52695 Cancer diagnosis type

The element related to the type of cancer diagnosis the participant/subject has or had

Exploratory Medical History Stroke Stroke
C58891 Imaging aneurysm shear rate mean unit of measure

Unit of measure of the mean shear rate of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C54993 Cocaine exposure age end value

Age in years at which the subject/participant's exposure to cocaine ended

Exploratory Prior and Concomitant Medications Stroke Stroke
C54915 Unruptured intracranial aneurysm management plan initial status

Status of initial management plan for unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.