CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1151-C19259	C19259	Occupation primary other status text	The free-text field to capture other status indicating the participant's/subject's current primary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F2436-C54916	C54916	Unruptured intracranial aneurysm observation reason	Reason for observation only of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F1164-C13516	C13516	Hand strength findings result	Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F2832-C13208	C13208	Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale	Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F1150-C10676	C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
F2567-C07375	C07375	PTSD Checklist Civilian (PCL-C) - Memories indicator	Indicator of whether the subject experiences repeated, disturbing memories, thoughts, or images of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1152-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F2567-C07383	C07383	PTSD Checklist Civilian (PCL-C) - Loss interest indicator	Indicator of whether the subject experiences loss of interest in activities that you used to enjoy, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F2567-C07391	C07391	PTSD Checklist Civilian (PCL-C) - Jumpy indicator	Indicator of whether the subject experiences feeling jumpy or easily startled, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1174-C54776	C54776	Imaging aneurysm inflow mean rate	Rate of mean inflow to the aneurysm, as determined by imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1169-C14517	C14517	Device manufacturer name	The company responsible for development of the device	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1152-C58354	C58354	Other cancer type text	Text of type of other cancer(s) that the subject/participant has ever been diagnosed with	Exploratory	Medical History	False	Stroke	Stroke
F1206-C54998	C54998	Medication immunosuppressant current former type	Type of immunosuppressant medication formerly or currently taken by the subject/participant	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1174-C58900	C58900	Imaging aneurysm oscillatory shear stress mean value unit of measure	Unit of measure of the value of the mean oscillatory shear stress of the aneurysm, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C13948	C13948	Imaging mean blood velocity measurement	Indicates mean velocity measurement (cm/sec) of blood	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1182-C58885	C58885	Supportive medical equipment type	If the participant/ subject was provided with any supportive medical equipment, describes the type(s) of equipment received	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C55345	C55345	Microdialysis cerebral probe number	The number of probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54760	C54760	Imaging aneurysm 3D reconstruct indicator	Indicator of whether a three-dimensional reconstruction of the aneurysm was produced via imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1152-C52620	C52620	Medical history atrial fibrillation other cause text	The free-text field related to other cause of atrial fibrillation	Exploratory	Medical History	False	Stroke	Stroke
F1206-C12207	C12207	Gastrointestinal therapy take nutrition supplement indicator	Indicator whether the participant/subject is taking nutritional supplements	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1169-C55358	C55358	Microdialysis cerebral analyte pyruvate measurement	The value of pyruvate in in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54768	C54768	Imaging aneurysm viscous dissipation measurement	Measurement of the mean viscous dissipation of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1151-C19260	C19260	Occupation secondary status	The status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F2436-C54917	C54917	Unruptured intracranial aneurysm treatment reason	Reason for treatment of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F1164-C13517	C13517	Hand function findings result	Assess hand function on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke

Displaying 126 - 150 of 1543

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.