CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1150-C14124	C14124	Social security number	A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government	Supplemental	Demographics	False	Stroke	Stroke
F1150-C18806	C18806	Country of residence other text	The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
F1151-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Stroke	Stroke
F1151-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	Supplemental	Social Status	False	Stroke	Stroke
F1151-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Stroke	Stroke
F1151-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	Supplemental	Social Status	False	Stroke	Stroke
F1151-C00206	C00206	Family income supported persons count	Count of all people, including the participant/subject, who are supported by the household gross annual income reported	Supplemental	Social Status	False	Stroke	Stroke
F1151-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Stroke	Stroke
F1151-C00214	C00214	Living with persons count	Count of other people with whom the participant/subject currently lives, cohabits, or stays	Supplemental	Social Status	False	Stroke	Stroke
F1151-C00215	C00215	Living with person relationship type	Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays	Supplemental	Social Status	False	Stroke	Stroke
F1151-C10678	C10678	Employment full-time status	Status of participant/subject's current full-time employment	Supplemental	Social Status	False	Stroke	Stroke
F1151-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Stroke	Stroke
F1152-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Medical History	False	Stroke	Stroke
F1152-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	Stroke	Stroke
F1152-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Supplemental	Medical History	False	Stroke	Stroke
F1152-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Supplemental-Highly Recommended	Medical History	False	Stroke	Stroke
F1152-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Stroke	Stroke
F1152-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Stroke	Stroke
F1152-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	Stroke	Stroke
F1152-C00321	C00321	Medical history for body system indicator	Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system	Supplemental	Medical History	False	Stroke	Stroke
F1152-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Stroke	Stroke
F1152-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical History	False	Stroke	Stroke
F1153-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Stroke	Stroke
F1153-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	Stroke	Stroke
F1153-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Family History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.