CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 1542
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14124 Social security number

A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government

Supplemental Demographics Stroke Stroke
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Exploratory Demographics Stroke Stroke
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Supplemental Social Status Stroke Stroke
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

Supplemental Social Status Stroke Stroke
C00204 Employment current status

Status of participant/subject's current employment

Supplemental Social Status Stroke Stroke
C00205 Family income range

Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member

Supplemental Social Status Stroke Stroke
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

Supplemental Social Status Stroke Stroke
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Supplemental Social Status Stroke Stroke
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

Supplemental Social Status Stroke Stroke
C00215 Living with person relationship type

Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays

Supplemental Social Status Stroke Stroke
C10678 Employment full-time status

Status of participant/subject's current full-time employment

Supplemental Social Status Stroke Stroke
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Stroke Stroke
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Supplemental Medical History Stroke Stroke
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Stroke Stroke
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

Supplemental Medical History Stroke Stroke
C00315 Medical history global assessment indicator

Indicator of whether the participant/subject has a history of any medical problems/conditions

Supplemental-Highly Recommended Medical History Stroke Stroke
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's/subject's medical history

Supplemental Medical History Stroke Stroke
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's/subject's medical history

Supplemental Medical History Stroke Stroke
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant/subject is ongoing

Supplemental Medical History Stroke Stroke
C00321 Medical history for body system indicator

Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system

Supplemental Medical History Stroke Stroke
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Stroke Stroke
C18666 Body system other text

The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Stroke Stroke
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Stroke Stroke
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event

Supplemental Family History Stroke Stroke
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Family History Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.