CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2832-C13211	C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2567-C07378	C07378	PTSD Checklist Civilian (PCL-C) - Very Upset indicator	Indicator of whether the subject experiences feeling very upset when something reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F2567-C07386	C07386	PTSD Checklist Civilian (PCL-C) - Future indicator	Indicator of whether the subject experiences feeling as if your future will somehow be cut short, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1182-C58884	C58884	Supportive medical equipment indicator	Indicates if the participant/ subject was provided with any supportive medical equipment	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C55344	C55344	Microdialysis cerebral probe location anatomic site	Free-text field to describe the location of the probe for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1152-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Exploratory	Medical History	False	Stroke	Stroke
F1164-C13516	C13516	Hand strength findings result	Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C19078	C19078	Cardiovascular history cardiac surgery other text	The free-text field related to 'Cardiovascular history cardiac surgery type' specifying other text. Type of cardiac surgery or mechanical intervention the participant/subject underwent	Exploratory	Medical History	False	Stroke	Stroke
F1151-C19258	C19258	Occupation primary status	The status indicating the participant's/subject's current primary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F2827-C54736	C54736	Contralateral stenocclusive vessel disease indicator	Indicator for the presence of contralateral stenoocclusive vessel disease	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1152-C52620	C52620	Medical history atrial fibrillation other cause text	The free-text field related to other cause of atrial fibrillation	Exploratory	Medical History	False	Stroke	Stroke
F1206-C12207	C12207	Gastrointestinal therapy take nutrition supplement indicator	Indicator whether the participant/subject is taking nutritional supplements	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1169-C55358	C55358	Microdialysis cerebral analyte pyruvate measurement	The value of pyruvate in in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54768	C54768	Imaging aneurysm viscous dissipation measurement	Measurement of the mean viscous dissipation of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C54776	C54776	Imaging aneurysm inflow mean rate	Rate of mean inflow to the aneurysm, as determined by imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1169-C14517	C14517	Device manufacturer name	The company responsible for development of the device	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1152-C58354	C58354	Other cancer type text	Text of type of other cancer(s) that the subject/participant has ever been diagnosed with	Exploratory	Medical History	False	Stroke	Stroke
F1206-C54998	C54998	Medication immunosuppressant current former type	Type of immunosuppressant medication formerly or currently taken by the subject/participant	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1174-C58900	C58900	Imaging aneurysm oscillatory shear stress mean value unit of measure	Unit of measure of the value of the mean oscillatory shear stress of the aneurysm, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2832-C13212	C13212	Generalized Anxiety Disorder (GAD-7) - total score	Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2567-C07379	C07379	PTSD Checklist Civilian (PCL-C) - Physical reaction indicator	Indicator of whether the subject experiences having physical reactions (e.g., heart pounding, trouble breathing, sweating) when something reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1174-C13948	C13948	Imaging mean blood velocity measurement	Indicates mean velocity measurement (cm/sec) of blood	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2567-C07387	C07387	PTSD Checklist Civilian (PCL-C) - Falling asleep indicator	Indicator of whether the subject experiences trouble falling or staying asleep, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1182-C58885	C58885	Supportive medical equipment type	If the participant/ subject was provided with any supportive medical equipment, describes the type(s) of equipment received	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C55345	C55345	Microdialysis cerebral probe number	The number of probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.