CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C10823	C10823	Alcohol last consumed date and time	Date (and time, if applicable and known) the participant/subject last drank alcohol	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1171-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C02427	C02427	Epidural hematoma status	Status of a collection of blood between the skull and dura. On CT, the EDH typically (though not always) has a biconvex shape, an adjacent skull fracture/scalp injury, and classically does not cross sutural margins. (In patients with skull fractures, especially those in children involving the sutures, this rule may not always apply.) The acute EDH is hyperdense, but may contain hypodense areas representing unclotted blood. As the EDH evolves, it gradually loses its hyperdensity and may appear iso/hypodense. On MRI, the acute EDH is hypo/isointense on T1 and very hypointense on T2, GRE, and SW-imaging. The inwardly displaced dura should be directly visualized on MR as a thin dark line on all pulse sequences	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C02437	C02437	Imaging modality type	Type of radiologic study performed on the participant	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C02445	C02445	Intraventricular hemorrhage volume measurement	Measured volume in cubic centimeters of intraventricular hemorrhage	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C02446	C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C02469	C02469	Subarachnoid hemorrhage indicator	Indicator of macroscopic blood located between the brain surface and the arachnoid membrane. On CT and MR, the blood in this location will follow the contour of the sulci and cisterns. Acute SAH is hyperdense on CT and hyperintense on FLAIR MR imaging	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13756	C13756	Imaging acute infarct present status	The status of the presence of acute infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13762	C13762	Imaging infarcts one vascular territory indicator	Indicates acute infarct(s) are all in one vascular territory	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13763	C13763	Imaging circulations involved anatomic site	Indicates circulations involved	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13764	C13764	Imaging brain structures involved anatomic site	Indicates structures involved	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13766	C13766	Imaging brain acute infarct anatomic site	Indicates the anatomic brain region of the acute infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13767	C13767	Imaging vascular Territory location of acute infarct name	Indicates the vascular territory location of the acute infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13768	C13768	Imaging additional vascular result	Indicates additional vascular imaging findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13769	C13769	Imaging planimetric volume value	Indicates acute lesion volume	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13770	C13770	Imaging acute lesion count	Indicates acute lesion count	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13772	C13772	Imaging acute ischemic lesion volume method type	Indicates acute lesion volume Method	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13773	C13773	Imaging lesion relative threshold amount text	Indicates acute lesion threshold relative amount	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13774	C13774	Imaging one third middle cerebral artery territory involved indicator	Indicates if 1/3 middle cerebral artery (MCA) territory is involved	Exploratory	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.