CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14458 Hip circumference measurement

A measurement of the body circumference at the level of the hip. It should be the hip circumference at its widest part of the buttocks or hip

 Supplemental Vital Signs False Stroke Stroke
C14464 Waist-hip ratio value

A measurement of the ratio of the body circumference at the level of the hips and the level of the waist

 Supplemental Vital Signs False Stroke Stroke
C14537 Central venous pressure (CVP) measurement

A measurement of the pressure of blood in the central venous system, abbreviated as CVP

 Supplemental Vital Signs False Stroke Stroke
C14538 Central venous pressure (CVP) unit of measure

Units used to measure the pressure of blood in the central venous system

 Supplemental Vital Signs False Stroke Stroke
C14539 Cardiac output measurement

The measurement of volume of blood pumped by the heart per minute. The recommended unit for recording cardiac output is liters per minute (LPM)

 Supplemental Vital Signs False Stroke Stroke
C14540 Pulmonary artery wedge pressure measurement

Pulmonary artery wedge pressure (PAWP) or pulmonary capillary wedge pressure (PCWP) is the intravascular pressure as measured by a catheter wedged into the distal pulmonary artery. It is used to measure indirectly the mean left atrial pressure

 Supplemental Vital Signs False Stroke Stroke
C14541 Systemic vascular resistance measurement

A measurement of the arteriolar constriction throughout the body

 Supplemental Vital Signs False Stroke Stroke
C14542 Systemic vascular resistance unit of measure

Units used to measure the systemic vascular resistance

 Supplemental Vital Signs False Stroke Stroke
C18767 Temperature measurement other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured

 Supplemental Vital Signs False Stroke Stroke
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

 Supplemental Laboratory Tests False Stroke Stroke
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Supplemental Laboratory Tests False Stroke Stroke
C01702 Pregnancy test date and time

The date (and time if applicable and known) when the pregnancy test was performed

 Supplemental Laboratory Tests False Stroke Stroke
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

 Supplemental Laboratory Tests False Stroke Stroke
C01704 Pregnancy test specimen type

Type of specimen collected to perform the pregnancy test

 Supplemental Laboratory Tests False Stroke Stroke
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests False Stroke Stroke
C01706 Lab test result text

Result of the laboratory test

 Supplemental Laboratory Tests False Stroke Stroke
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

 Supplemental Laboratory Tests False Stroke Stroke
C01710 Pregnancy test qualitative result value

Result of the pregnancy test

 Supplemental Laboratory Tests False Stroke Stroke
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests False Stroke Stroke
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests False Stroke Stroke
C10896 Pregnancy test performed indicator

Indicator as to whether or not a pregnancy test was performed on the participant/subject

 Supplemental Laboratory Tests False Stroke Stroke
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

 Supplemental Laboratory Tests False Stroke Stroke
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

 Supplemental Laboratory Tests False Stroke Stroke
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C10821 Food last consumed date and time

Date (and time, if applicable and known) the participant/subject last ate food

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
Displaying 326 - 350 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.