CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14271 Sophia imaging stroke composite diagnosis method type

Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C14626 Sophia delivery mode type

Mother's mode of delivery of the neonate. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C18909 Intracerebral hemorrhage presumed cause other text

The free-text field related to 'Intracerebral hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C18910 Intraventricular hemorrhage presumed cause other text

The free-text field related to 'Intraventricular hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C18911 Subarachnoid hemorrhage etiology other text

The free-text field related to 'Subarachnoid hemorrhage etiology type' specifying other text. Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C19076 Sophia signs symptoms presentation neurological signs other text

The free-text field related to 'Sophia signs and symptoms on presentation type' specifying other text. Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C19077 Sophia imaging stroke composite diagnosis method other text

The free-text field related to 'Imaging stroke composite diagnosis method type' specifying other text. Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C04804 Hospital discharge date and time

Date (and time, if applicable and known) the participant/subject was discharged from the hospital

 Supplemental-Highly Recommended Hospital Discharge False Stroke Stroke
C14213 Diagnosis principal discharge code

The principal diagnosis is defined in the Uniform Hospital Discharge Data Set (UHDDS) as "that condition established after study to be chiefly responsible for occasioning the admission of the patient to the hospital for care."

 Supplemental-Highly Recommended Hospital Discharge False Stroke Stroke
C14215 Diagnosis stroke risk factor new indicator

Were there any new diagnoses (i.e., diagnosed for the first time) related to stroke risk factors during the hospital stay?

 Supplemental Hospital Discharge False Stroke Stroke
C14216 Diagnosis stroke risk factor new type

If there were any new diagnoses related to stroke risk factors during hospital stay, describes those risk factors

 Supplemental Hospital Discharge False Stroke Stroke
C14218 Commission on Accreditation of Rehabilitation Facilities (CARF) - destination indicator

Indicates if the discharge destination is a rehabilitation center accredited by the Commission on Accreditation of Rehabilitation Facilities (CARF)

 Supplemental Hospital Discharge False Stroke Stroke
C14627 Stroke initial residence or discharge destination type

Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay

 Supplemental-Highly Recommended Hospital Discharge False Stroke Stroke
C18908 Diagnosis stroke risk factor new other text

The free-text field related to 'Diagnosis new type' specifying other text. If there were any new diagnoses related to stroke risk factors during hospital stay, describes those risk factors

 Supplemental Hospital Discharge False Stroke Stroke
C21666 Diagnosis principal discharge stroke related ICD-10-CM code

If the Principal ICD-10-CM diagnosis code is a stroke-related code, then enter it here. If it is not, then select the Secondary ICD-10 diagnosis code that is stroke-related, as determined by ICD-10-CM code recorded in the medical record

 Supplemental Hospital Discharge False Stroke Stroke
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Supplemental Physical/Neurological Exam False Stroke Stroke
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Physical/Neurological Exam False Stroke Stroke
C13513 Mini-Mental State Examination (MMSE) - total score

Total score for the Mini-Mental State Examination (MMSE). The MMSE is a brief, quantitative measure of cognitive status in adults. It can be used to screen for cognitive impairment, to estimate the severity of cognitive impairment at a given point in time, to follow the course of cognitive changes in an individual over time, and to document an individual's response to treatment. The MMSE has demonstrated validity and reliability in psychiatric, neurologic, geriatric, and other medical populations

 Supplemental Physical/Neurological Exam False Stroke Stroke
C13514 Consciousness findings result

Assess consciousness using the Scandinavian Stroke Scale

 Exploratory Physical/Neurological Exam False Stroke Stroke
C13515 Orientation findings result

Assess orientation using the Scandinavian Stroke Scale

 Exploratory Physical/Neurological Exam False Stroke Stroke
C13516 Hand strength findings result

Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale

 Exploratory Physical/Neurological Exam False Stroke Stroke
C13517 Hand function findings result

Assess hand function on the affected side using the Orgogozo Stroke Scale

 Exploratory Physical/Neurological Exam False Stroke Stroke
C13518 Upper limb tone findings result

Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale

 Exploratory Physical/Neurological Exam False Stroke Stroke
C13519 Lower limb tone findings result

Assess tone of lower limbs on the affected side using the Orgogozo Stroke Scale

 Exploratory Physical/Neurological Exam False Stroke Stroke
C13521 Gait walk unassisted result

Ability of the participant/subject to walk multiple steps unassisted

 Supplemental Physical/Neurological Exam False Stroke Stroke
Displaying 276 - 300 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.