CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C14244	C14244	Subarachnoid hemorrhage etiology type	Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14245	C14245	Hunt and Hess scale	This is a 5 level scale for classifying the severity of Subarachnoid Hemorrhage (SAH), the higher the score the lower the likelihood of survival	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14246	C14246	Fisher scale	Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14247	C14247	Modified fisher scale	Modified Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14248	C14248	Ogilvy subarachnoid hemorrhage grade	Ogilvy comprehensive grading system for classifying severity of SAH. In the system, 1 point is assigned for Hunt and Hess Grade 4 or 5, Fisher Scale score of 3 or 4, aneurysm size greater than 10 mm, patient age older than 50 years, and if the lesion is a giant (>= 25 mm) posterior circulation lesion. By adding the total points, the 5-point grading system is obtained	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14249	C14249	Subarachnoid hemorrhage interhemispheric fissure score	Subarachnoid hemorrhage column scale (Hijdra) for the interhemispheric fissure score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14250	C14250	Subarachnoid hemorrhage Sylvian fissure lateral part score	SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14251	C14251	Subarachnoid hemorrhage basal part score	SAH Volume Scale (Hijdra) - Basal part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14252	C14252	Subarachnoid hemorrhage suprasellar cistern score	SAH Volume Scale (Hijdra) - Suprasellar cistern left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14253	C14253	Subarachnoid hemorrhage ambient cistern score	SAH Volume Scale (Hijdra) - Ambient cistern left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14254	C14254	Subarachnoid hemorrhage quadrigeminal cistern score	SAH Volume Scale (Hijdra) - Quadrigeminal cistern score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14255	C14255	Subarachnoid hemorrhage volume total measurement	Subarachnoid hemorrhage (SAH) volume scale (Hijdra) - total amount of subarachnoid blood. Sum of the scores of the 10 basal cisterns and fissures	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14257	C14257	Childhood stroke type	Indicates the type of clinical stroke suffered by the child	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14258	C14258	Perinatal stroke type	Indicates the type of clinical stroke suffered by the neonate	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14259	C14259	Pediatric Stroke Classification (PSC) - sub type	Pediatric Stroke Classification (PSC) system (Wraige, 2005) subtype	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14260	C14260	Sebire-International Pediatric Stroke Study (IPSS) - sub type	The subtype as related to the Sebire/International Pediatric Stroke Study (IPSS) classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14261	C14261	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - standard primary acute sub type	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: acute - all patients with defined childhood arterial ischemic stroke will be classified into a single acute primary category, at the time of initial diagnosis (within 1 month of presentation)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14263	C14263	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - primary chronic sub type	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: chronic - patients with an initial vascular diagnosis (at 0-1 month) for "Primary Classification: Acute" are given a follow-up diagnosis based on studies obtained at or after 3-6 months that will capture any progression, stability or regression of the arteriopathy	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14265	C14265	NIH Ischemic Perinatal Stroke (IPS) - sub type	Subtype based on the Ischemic Perinatal Stroke (IPS) Workshop sponsored by NIH in 2007	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14266	C14266	Sophia vessel sub type	Sophia classification of stroke subtype by vessel affected	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14267	C14267	Sophia timing sub type	Sophia classification of stroke subtype by timing of stroke	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14268	C14268	Sophia time detection type	Time of detection of the stroke event in the participant/subject	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14269	C14269	Sophia signs symptoms presentation type	Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14270	C14270	Sophia stroke vessels affected type	Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.