CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54762 Imaging aneurysm occlusion percent value

Value of percentage of aneurysm that is occluded, as determined from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C52622 Medical history cardiac catheterization recency rate

The element related to the recency of cardiac catheterization the participant/subject has had

Exploratory Medical History Stroke Stroke
C55360 Microdialysis cerebral analyte lactate pyruvate ratio value

The ratio of lactate to pyruvate in the cerebral microdialysis analyte

Exploratory Biospecimen Collection and Processing Stroke Stroke
C54918 Unruptured intracranial aneurysm management compliance indicator

Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C58935 Facial segmental hemangioma PHACE syndrome indicator

The indicator related to whether the participant/subject has facial segmental hemangioma/PHACE syndrome

Exploratory Medical History Stroke Stroke
C13210 Generalized Anxiety Disorder (GAD-7) - easily annoyed scale

Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Stroke Stroke
C07377 PTSD Checklist Civilian (PCL-C) - Act indicator

Indicator of whether the subject experiences suddenly acting or feeling as if a stressful experience were happening again (as if you were reliving it), as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C58817 Parietal lobe function status

Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)

Exploratory Physical/Neurological Exam Stroke Stroke
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Exploratory Demographics Stroke Stroke
C58852 IV tPA not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Exploratory Thrombolytic/Reperfusion Therapies Stroke Stroke
C54904 Vessel occlude temporary surgery procedure count

Count of blood vessels that were temporarily occluded during surgery or other procedure

Exploratory SAH Surgical/Procedural Interventions Stroke Stroke
C58783 Race expanded paternal category

Category of race(s) or region(s) the participant/subject's father most closely identifies with

Exploratory Demographics Stroke Stroke
C13880 Digital Subtraction Angiography (DSA) site of access anatomic site

The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment

Exploratory Aneurysm Location and Dimensions Stroke Stroke
C52560 Occupation paid type

Type of paid occupation as defined by the International Labor Organization/International Standard Classification of Ocupations (ILO/ISCO)

Exploratory Social Status Stroke Stroke
C13774 Imaging one third middle cerebral artery territory involved indicator

Indicates if 1/3 middle cerebral artery (MCA) territory is involved

Exploratory Parenchymal Imaging Stroke Stroke
C13519 Lower limb tone findings result

Assess tone of lower limbs on the affected side using the Orgogozo Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C52569 Brain aneurysm family member relationship text

Specify the relationship(s) that a family member with brain aneurysm(s) has with the subject/participant

Exploratory Family History Stroke Stroke
C07386 PTSD Checklist Civilian (PCL-C) - Future indicator

Indicator of whether the subject experiences feeling as if your future will somehow be cut short, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C58884 Supportive medical equipment indicator

Indicates if the participant/ subject was provided with any supportive medical equipment

Exploratory Rehabilitation Therapies Stroke Stroke
C55348 Device model number

The model number for the device used

Exploratory Biospecimen Collection and Processing Stroke Stroke
C55361 Microdialysis cerebral novel target analyte indicator

The indicator related to whether there were any novel target analytes in the cerebral microdialysis

Exploratory Biospecimen Collection and Processing Stroke Stroke
C54771 Imaging aneurysm wall shear stress maximum measurement

Measurement of the maximum wall shear stress of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C58928 Medical history carotid endarterectomy recent date

Date of most recent carotid endarterectomy performed on the participant/subject

Exploratory Medical History Stroke Stroke
C54919 Unruptured intracranial aneurysm management noncompliance text

The free-text field related to 'Unruptured intracranial aneurysm management compliance indicator' specifying noncompliance

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Stroke Stroke
Displaying 26 - 50 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.