CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C58806	Pre-hospital stroke screen tool other text	The free-text field related to 'Pre-hospital stroke screen tool' specifying other text. Source of the data provided on the case report form	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C18884	Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type' specifying other text. The type of symptoms/conditions that were present and relevant for cardioembolic source	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
C12896	Echocardiogram left ventricle end diastolic volume measurement	Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole	Supplemental	Echocardiogram II	False	Stroke	Stroke
C04504	ECG heart rhythm result type	Type of heart rhythm apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
C14218	Commission on Accreditation of Rehabilitation Facilities (CARF) - destination indicator	Indicates if the discharge destination is a rehabilitation center accredited by the Commission on Accreditation of Rehabilitation Facilities (CARF)	Supplemental	Hospital Discharge	False	Stroke	Stroke
C10734	Echocardiogram left ventricle mass measurement	Left ventricle mass (index) measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
C58827	Hyperdense venous sinus or cortical vein specify text	Specify in text the hyperdense observations that were made	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C11133	History data not obtained reason	Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Supplemental	History Data Source and Reliability	False	Stroke	Stroke
C58874	Location post-acute stroke discharge other text	The free-text field related to 'Location post-acute stroke discharge type' specifying other text. Indicates the participant's/subject's current location after discharge from the acute hospital for the index stroke/transient ischemic attack (TIA)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C02492	Venous sinus injury anatomic site	Anatomic site of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C14464	Waist-hip ratio value	A measurement of the ratio of the body circumference at the level of the hips and the level of the waist	Supplemental	Vital Signs	False	Stroke	Stroke
C12859	Cardiac MRI other cardiac anatomy structure result	Result of evaluation of the structure of the selected other cardiac anatomy as observed on the cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
C54272	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory vs. attention difference score	Difference score calculated as a subtraction of Attention index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C12904	Echocardiogram left ventricular mass measurement	The left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume	Supplemental	Echocardiogram II	False	Stroke	Stroke
C04512	ECG QTc interval	Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
C13513	Mini-Mental State Examination (MMSE) - total score	Total score for the Mini-Mental State Examination (MMSE). The MMSE is a brief, quantitative measure of cognitive status in adults. It can be used to screen for cognitive impairment, to estimate the severity of cognitive impairment at a given point in time, to follow the course of cognitive changes in an individual over time, and to document an individual's response to treatment. The MMSE has demonstrated validity and reliability in psychiatric, neurologic, geriatric, and other medical populations	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
C10742	Echocardiogram degree of mitral regurgitation status	Assessment with echocardiography of whether there is a disorder of the heart in which the mitral valve does not close properly when the heart pumps out blood	Supplemental	Echocardiogram	False	Stroke	Stroke
C18793	Medical history condition other text	The free-text field related to 'Medical history condition type' specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant/subject or found documented in the medical record	Supplemental	Medical History	False	Stroke	Stroke
C58837	Epidural hematoma thickness measurement	Measured thickness in mm of the epidural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C11086	School placement type	The description of the type of education the participant/subject receives with details of being with or without assistance	Supplemental	Prior Functional Status	False	Stroke	Stroke
C58883	Adjunctive treatment drool surgical procedure injection specify text	The free-text field related to 'Adjunctive treatment type' specifying the type of surgical procedure or injections for drooling text. Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C54757	Imaging aneurysm dome size value	Value of the aneurysm dome size determined by imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C13836	Fisher grade	Indicates Fisher grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Death	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.