CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2380-C10743	C10743	Echocardiogram tricuspid valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the tricuspid valve as assessed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14007	C14007	Imaging Transcranial Doppler (TCD) findings result type	Indicates Transcranial Doppler (TCD) findings	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07095	C07095	Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator	Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54898	C54898	Surgery procedure minute duration	Duration in minutes of surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58851	C58851	Physical activity increase intervention other text	The free-text field related to 'Physical activity increase intervention type' specifying other text. If the participant/subject received recommendations to increase physical activity, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1206-C58982	C58982	Medication calcium-channel blocker past week type	Type of calcium-channel blocker medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13802	C13802	Age-related white matter changes (ARWMC) scale - parieto-occipital score	The parieto-occipital score age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C60361	C60361	IV thrombolytic agent type	Type of IV thrombolytic agent given to the participant	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1171-C02427	C02427	Epidural hematoma status	Status of a collection of blood between the skull and dura. On CT, the EDH typically (though not always) has a biconvex shape, an adjacent skull fracture/scalp injury, and classically does not cross sutural margins. (In patients with skull fractures, especially those in children involving the sutures, this rule may not always apply.) The acute EDH is hyperdense, but may contain hypodense areas representing unclotted blood. As the EDH evolves, it gradually loses its hyperdensity and may appear iso/hypodense. On MRI, the acute EDH is hypo/isointense on T1 and very hypointense on T2, GRE, and SW-imaging. The inwardly displaced dura should be directly visualized on MR as a thin dark line on all pulse sequences	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C58923	C58923	Focal Cerebral Arteriopathy Severity Score (FCASS) - delta point score code	The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1152-C00321	C00321	Medical history for body system indicator	Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system	Supplemental	Medical History	False	Stroke	Stroke
F2827-C54756	C54756	Injection site laterality type	Type for the side of the body to which an injection was administered	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C12864	C12864	Echocardiogram left atrial dimension measurement	Measurement of the left atrial dimension obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1150-C00028	C00028	Language spoken fluent ISO code	Code (ISO 639-2)for each language that the participant/subject speaks fluently	Supplemental	Demographics	False	Stroke	Stroke
F2838-C14015	C14015	High intensity transient signal hits count	Numeric value counting the number of high intensity transient signals hits	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07103	C07103	Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator	Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54906	C54906	Vessel occlude temporary surgery procedure total duration	Total duration of all temporary vessel occlusions during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58861	C58861	Recreational prescription drug abuse discontinue intervention other text	The free-text field related to 'Recreational prescription drug abuse discontinue intervention type' specifying other text. If the participant/subject received counseling to discontinue recreational or prescription drug abuse, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2838-C13899	C13899	Imaging probe type text	The text describing the type of imaging probe	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13885	C13885	Imaging vessel angiography arterial result	Indicates vessel imaging angiography arterial findings	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58990	C58990	Medication hormone replacement past week other text	The free-text field related to 'Medication hormone replacement past week type', specifying text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C52703	C52703	Sleep apnea type text	The free-text field related to the type of sleep apnea	Supplemental	Medical History	False	Stroke	Stroke
F1305-C14701	C14701	Berg Balance Scale (BBS) - retrieve floor object scale	The scale for assessment of picking up object from the floor from a standing position based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
F2830-C02497	C02497	Imaging scanner model name	Name of model of imaging scanner	Supplemental	Imaging Acquisition	False	Stroke	Stroke
F1206-C54991	C54991	Cocaine use duration	Duration in months for which the subject/participant took or has taken cocaine	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.