CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C13816	C13816	Hematoma lobar region epicenter anatomic site	The site of hematoma, a localized collection of blood outside the blood vessels, in the lobar epicenter region	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1174-C54763	C54763	Imaging aneurysm Raymond Roy Occlusion Classification category	Category of the Raymond-Roy Occlusion Classification that applies to the aneurysm, as determined from imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2826-C54909	C54909	Endovascular complication intra surgery procedure type	Type of endovascular complication(s) which occurred during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1152-C52602	C52602	Medical history migraine aura indicator	The indicator related to the participant/subject having migraine(s) with aura	Supplemental	Medical History	False	Stroke	Stroke
F1169-C58723	C58723	Blood collection method type other text	The free-text field related to 'Blood collection method type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1171-C13764	C13764	Imaging brain structures involved anatomic site	Indicates structures involved	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2824-C54923	C54923	Workload before event rate	Rate in hours per week of the subject/participant's workload prior to the event	Supplemental	Return to Work	False	Stroke	Stroke
F1056-C17506	C17506	Cardiac MRI result comment text	Results comments on the cardiac Magnetic Resonance Imaging results	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2380-C18878	C18878	Echocardiogram result other text	The free-text field related to 'Echocardiogram result status' specifying other text. The global results of the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F0936-C10745	C10745	Echocardiogram early mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (E) assessed with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1180-C58796	C58796	Ventricular drain place type	Type of ventricular drainage placed	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1178-C14635	C14635	Extracranial venous thromboembolism prophylaxis type	Type(s) of extracranial venous thromboembolism (VTE) prophylaxis used	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1162-C14255	C14255	Subarachnoid hemorrhage volume total measurement	Subarachnoid hemorrhage (SAH) volume scale (Hijdra) - total amount of subarachnoid blood. Sum of the scores of the 10 basal cisterns and fissures	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2380-C12867	C12867	Echocardiogram left ventricular trabeculation status	Status of the trabecular layer being greater than 2:1 or less than 2:1 the thickness of the compact layer as assessed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1171-C13826	C13826	Hematoma chronic indicator	Indicates presence of Chronic hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2827-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1160-C18905	C18905	Stroke symptom other text	The free-text field related to 'Stroke symptom type' specifying other text. The symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1158-C58809	C58809	Pre-hospital severity scale type other text	The free-text field related to "Pre-hospital severity scale type" specifying other text	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C58842	C58842	Herniation location type	Indicates herniation location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1156-C18824	C18824	History data not obtained other text	The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Supplemental	History Data Source and Reliability	False	Stroke	Stroke
F1171-C13841	C13841	Subdural hematoma type	Indicates Subdural hematoma type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2828-C54273	C54273	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus language difference score	Difference score calculated as a subtraction of Language index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1949-C52879	C52879	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A follow trail complete time	The element related to the time it takes the participant/subject to follow the trail in Part A as part of the Trail Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1173-C13934	C13934	Intima media thickness (IMT) max near-wall measurement	Indicates max intima media thickness (IMT) near-wall measurement (mm)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F0372-C07107	C07107	Center for Epidemiologic Studies-Depression Scale (CES-D) - crying spell indicator	Indicates how often the subject had crying spells in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.