CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2168-C20526	C20526	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category	Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F1169-C58742	C58742	Shipping conditions type	Indicate the specimen shipping conditions	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1161-C01001	C01001	Glasgow Coma Scale (GCS) - motor response scale	Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
F1178-C14630	C14630	Anticoagulant agent in hospital type	Type(s) of anticoagulant agents received during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1162-C14258	C14258	Perinatal stroke type	Indicates the type of clinical stroke suffered by the neonate	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1178-C18985	C18985	Antiplatelet agent in hospital other text	The free-text field related to 'Antiplatelet agent in hospital type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1169-C55746	C55746	Specimen surround dry ice shipment indicator	The indicator related to whether the specimen was surrounded by dry ice for shipping	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C01705	C01705	Lab test name	Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1178-C58951	C58951	Anticoagulant agent stroke discharge prescribe other text	The free-text field related to 'Anticoagulant agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1169-C58718	C58718	Tobacco last consumed date and time	Date (and time, if applicable and known) the participant/subject last used tobacco	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55009	C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1155-C00723	C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1155-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2836-C54695	C54695	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale	Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F1171-C13796	C13796	Modified Scheltens scale temporal score	Indicates Modified Scheltens scale - Temporal score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14408	C14408	Intra-sinus procedure type	If intra-sinus (i.e., for cerebral venous thrombosis) intervention was received, specifies the type of intra-sinus procedure performed on the participant/subject at this hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13903	C13903	Imaging interpretation site location	Indicates imaging interpretation site	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14210	C14210	Los Angeles Motor Scale (LAMS) - grip result	Assess the grip using the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1162-C58917	C58917	Focal Cerebral Arteriopathy Severity Score (FCASS) - supraclinoid internal carotid artery score scale	The scale which represents the severity of focal cerebral arteriopathy in the supraclinoid internal carotid artery (ICA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C54087	C54087	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time raw score	Complete time as a raw score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54744	C54744	Aneurysm size increase measurement	Measurement of the size increase of the aneurysm. The difference between the current largest diameter measurement and the previous diameter measurement along the same axis	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C12862	C12862	Echocardiogram left atrial enlargement status	Status of left atrial enlargement on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F0345-C18409	C18409	Glasgow Outcome date and time	Date and Time of Glasgow Outcome Scale	Supplemental	Glasgow Outcome Scale (GOS)	False	Stroke	Stroke
F2838-C14013	C14013	Intracranial stenosis mean velocity criterion value	Indicates intracranial stenosis mean velocity criterion	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.